ArticleJournal of the American Heart Association2026
From Insight to Action: A National Patient-Centered Strategic Framework for Improving Reproductive Health Outcomes in Individuals With Congenital Heart Disease.
Article in Journal of the American Heart Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
- Design and Implementation of My Health, My Heart: A Pilot Healthcare Transition Program for Adolescents with Congenital Heart Disease.Pediatric cardiology · 2026Article
Corrections and comments
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Authors and funding
15 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAn increasing number of patients with congenital heart disease (CHD) are pursuing pregnancy with the potential for cardiovascular complications. This study aimed to establish patient-centered national research and care priorities to improve pregnancy-related outcomes for individuals with CHD.
methodsThis mixed-methods study used a modified Stakeholder Engagement in Question Development methodology to systematically identify patient-centered priorities. Key activities included consortium engagement (phase 1), patient and provider questionnaires (phase 2), and an in-person facilitated meeting to explore survey results and follow-up virtual focus groups (phase 3). Reflexive thematic analysis was used to synthesize short- and long-term research priorities (phase 4).
resultsThree overarching goals emerged: (1) improving access to specialized CHD, cardio-obstetrics, and mental health care; (2) improving quality and consistency in clinical care; and (3) increasing patient and community engagement. These goals were then expanded into 5 central themes: (1) communication within the health care setting; (2) community engagement; (3) ancillary clinical support; (4) integration of patient-reported outcomes; and (5) implementation, education, and knowledge mobilization. Short-term (1-5-year) goals included expanded telemedicine use, best practice recommendations for multidisciplinary care coordination, and targeted educational resources. Long-term (5-10-year) goals included expansion of adult CHD and cardio-obstetrics programs, integration of mental health services, and advocacy to improve insurance coverage.
conclusionsThe consortium provided a national, community-driven prioritization that highlights actionable pathways to improve pregnancy outcomes for people with CHD. Sustained engagement with patients and community partners is essential to achieving durable improvements across cardio-obstetric care, education, research, and mental health.
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Registered trials
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