ArticleScientific data2026
A comprehensive European Colorectal Cancer Cohort dataset.
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Article in Scientific data, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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1citing papers in PubMed
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Who cites it
1 citing paper in PubMed.
- The European Health Data Space and biobanking in Europe: synergies, tensions and the future governance of data-driven health research.Frontiers in genetics · 2026Review
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Authors and funding
82 authors.
Petr HolubBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria. petr.holub@bbmri-eric.eu.ORCID http://orcid.org/0000-0002-5358-616X
Outi TörnwallBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Eva Garcia AlvarezBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria. eva.garcia-alvarez@bbmri-eric.eu.ORCID http://orcid.org/0000-0002-3522-5088
Rumyana ProynovaBBMRI.de/German Biobank Alliance and German Cancer Research Center, Heidelberg, Germany.
Florian StampeBBMRI.de/German Biobank Alliance and German Cancer Research Center, Heidelberg, Germany.
Saher MaqsoodBBMRI.de/German Biobank Alliance and German Cancer Research Center, Heidelberg, Germany.
Maxmilian AtaianInstitute of Applied Medical Informatics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Irene SchlünderBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Olli CarpénUniversity of Helsinki, Helsinki, Finland.
Gerrit MeijerNetherlands Cancer Institute (NKI), Amsterdam, The Netherlands.
Rudolf NenutilMasaryk Memorial Cancer Institute, Žlutý kopec 543/7, 60200, Brno, Czech Republic.
Dalibor ValíkFaculty of Medicine, Masaryk University, Kamenice 5, 62700, Brno, Czech Republic.
Barbara ParodiIRCCS Ospedale Policlinico San Martino, Largo Rosanna Benzi 10, 16132, Genova, Italy.
Annemieke HiemstraNetherlands Cancer Institute (NKI), Amsterdam, The Netherlands.
Mariska BierkensNetherlands Cancer Institute (NKI), Amsterdam, The Netherlands.
Esmeralda Castanos-VélezCharité - Universitätsmedizin Berlin, Berlin, Germany.
Frank ÜckertInstitute of Applied Medical Informatics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Diogo AlexandreBBMRI.de/German Biobank Alliance and German Cancer Research Center, Heidelberg, Germany.
Ondřej VojtíšekMasaryk Memorial Cancer Institute, Žlutý kopec 543/7, 60200, Brno, Czech Republic.
Anna-Liisa BaderBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Birgit SimellBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Caitlin AhernBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Vitomir HorvatBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Erik SteinfelderBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Matteo GnocchiNational Research Council-Institute of Biomedical Technologies, Segrate, Italy.
Marco MoscatelliNational Research Council-Institute of Biomedical Technologies, Segrate, Italy.
Alexander FürbaßBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Jiří HorákBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Francesca FrexiaCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.
Cecilia MasciaCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.ORCID http://orcid.org/0000-0002-8952-725X
Alessandro SulisCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.
Giovanni DelussuCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.
Mauro Del RioCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.
Vittorio MeloniCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.ORCID http://orcid.org/0000-0002-5978-2954
Luca PiredduCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.ORCID http://orcid.org/0000-0002-4663-5613
Simone LeoCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.ORCID http://orcid.org/0000-0001-8271-5429
Marco Enrico PirasCRS4, Visual and Data-Intensive Computing Group, Loc. Piscina Manna, 09050, Pula, CA, Italy.
Martin KačengaInsitute of Computer Science, Masaryk University, Šumavská 525/33, 60200, Brno, Czech Republic.
Stéphanie GofflotBiotheque Hospitalo-Universitaire de Liege, CHU de Liege, Avenue Hippocrate B23+1, 4000, Liege, Belgium.ORCID http://orcid.org/0000-0002-4367-617X
Sebastian MateMedical Center for Information and Communication Technology, Universitätsklinikum Erlangen, Krankenhausstraße 12, 91054, Erlangen, Germany.
Hans-Ulrich ProkoschMedical Center for Information and Communication Technology, Universitätsklinikum Erlangen, Krankenhausstraße 12, 91054, Erlangen, Germany.
Paolo RomanoIRCCS Ospedale Policlinico San Martino, Largo Rosanna Benzi 10, 16132, Genova, Italy.ORCID http://orcid.org/0000-0003-4694-3883
Daniela PistilloCenter for Biological Resources, IRCCS Humanitas Research Hospital, Via Manzoni 56, 20089, Rozzano, MI, Italy.
Michael HoffmeisterGerman Cancer Research Center (DKFZ), Division of Clinical Epidemiology of Early Cancer Detection, Im Neuenheimer Feld 581, 69120, Heidelberg, Germany.
Alexander BrobeilInstitute of Pathology; Tissue Bank of the National Center for Tumor Diseases (NCT), University of Heidelberg, Heidelberg, Germany.
Amila KugicBiobank Graz, Medical University of Graz, Neue Stiftingtalstraße 2/B/2, 8010, Graz, Austria.ORCID http://orcid.org/0000-0003-4674-0146
Berthold HuppertzMedical University of Graz, Division of Cell Biology, Histology and Embryology, Gottfried Schatz Research Center, Graz, Austria.
Valentina PaleariCenter for Biological Resources, IRCCS Humanitas Research Hospital, Via Manzoni 56, 20089, Rozzano, MI, Italy.
Heimo MüllerInternational Biobanking and Education, Medical University Graz, Neue Stiftingtalstrasse 2, 8010, Graz, Austria.ORCID http://orcid.org/0000-0002-9691-4872
Robert ReihsInternational Biobanking and Education, Medical University Graz, Neue Stiftingtalstrasse 2, 8010, Graz, Austria.ORCID http://orcid.org/0000-0001-8439-3689
Timo GemollSection for Translational Surgical Oncology and Biobanking, Department of Surgery, University of Luebeck and University Hospital Clinic Schleswig-Holstein, Ratzeburger Allee 160, 23538, Lübeck, Germany.
Yannick BantelCeGaT GmbH, Paul-Ehrlich-Straße 23, D-72076, Tübingen, Germany.
Tobias SjöblomUppsala University, Dept Immunology, Genetics and Pathology, Dag Hammarskjöldsväg 20, 75185, Uppsala, Sweden.ORCID http://orcid.org/0000-0001-6668-4140
Kyriacos KyriacouThe Cyprus Institute of Neurology and Genetics, Iroon Avenue, Agios Dometios, 2371, Cyprus.
Simona di MartinoPathology Unit and Biobank IRCCS- Regina Elena National Cancer Institute, via elio chianesi 53, Rome, Italy.
Gennaro CilibertoIRCCS National Cancer institute Regina Elena, Via Elio Chianesi 53, 00144, Rome, Italy.
Ann-Kristin Kock-SchoppenhauerIT Center for Clinical Research, University of Lübeck and University Hospital Schleswig-Holstein, Lübeck, Germany.
Martina OberländerInterdisciplinary Biobank Centre - Lübeck, University of Luebeck and University Hospital Clinic Schleswig-Holstein, Ratzeburger Allee 160, 23538, Lübeck, Germany.
Jens K HabermannBBMRI-ERIC, Neue Stiftingtalstrasse 2/B/6, 8010, Graz, Austria.
Gabriele HusmannUniversity Cancer Center Frankfurt, University Hospital Frankfurt, Theodor-Stern-Kai 7, 60590, Frankfurt, Germany.
Per-Henrik D EdqvistUppsala University, Dept Immunology, Genetics and Pathology, Dag Hammarskjöldsväg 20, 75185, Uppsala, Sweden.
Inti ZlobecInstitute of Tissue Medicine and Pathology, University of Bern, Murtenstrasse 31, CH-3008, Bern, Switzerland.
Martin D BergerDepartment of Medical Oncology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
Lars BoeckmannSection for Translational Surgical Oncology and Biobanking, Department of Surgery, University of Luebeck and University Hospital Clinic Schleswig-Holstein, Ratzeburger Allee 160, 23538, Lübeck, Germany.
Fabienne GeorgeCHU UCL Namur 1, av Gaston Therasse, 5530, Yvoir, Belgium.
Tom SoutheringtonUniversity of Turku, 20014, Turun yliopisto, Turku, Finland.ORCID http://orcid.org/0000-0002-0879-5042
Daniel P BruckerUniversity Hospital Frankfurt, 60590, Frankfurt, Germany.
Laurence FaugerasCHU UCL Namur 1, av Gaston Therasse, 5530, Yvoir, Belgium.
Joanna VellaThe Centre for Molecular Medicine and Biobanking, University of Malta, MSD2080, Msida, Malta.
Alex FeliceThe Centre for Molecular Medicine and Biobanking, University of Malta, MSD2080, Msida, Malta.
Malcolm PaceThe Centre for Molecular Medicine and Biobanking, University of Malta, MSD2080, Msida, Malta.
Chiara FalleriniUniversity of Siena, Viale Bracci, 1, 53100, Siena, Italy.
Alessandra RenieriUniversity of Siena, Viale Bracci, 1, 53100, Siena, Italy.ORCID http://orcid.org/0000-0002-0846-9220
Andreas HadjisavvasDepartment of Cancer Genetics, Therapeutics & Ultrastructural Pathology The Cyprus, Iroon Avenue, 2371, Ayios Dometios, Nicosia, Cyprus.
Karine SargsyanInternational Biobanking and Education, Medical University Graz, Neue Stiftingtalstrasse 2, 8010, Graz, Austria.
Maria A LoizidouThe Cyprus Institute of Neurology and Genetics, Iroon Avenue, Agios Dometios, 2371, Cyprus.
Tatiana Besse-HammerCHU Brugmann, Place A. Van Gehuchten 4, 1020, Bruxelles, Belgium.
Franziska VoglBiobank Graz, Medical University of Graz, Neue Stiftingtalstraße 2/B/2, 8010, Graz, Austria.
Jan-Eric LittonKarolinska Instituet, Stockholm, Sweden.
Michael HummelCharité - Universitätsmedizin Berlin, Berlin, Germany.
Kurt ZatloukalDiagnostic and Research Center for Molecular Biomedicine, Medical University Graz, Neue Stiftingtalstrasse 6, 8010, Graz, Austria.ORCID http://orcid.org/0000-0001-5299-7218
Marialuisa LavitranoUniversity Milano Bicocca, Milan, Italy.ORCID http://orcid.org/0000-0003-4852-1318
Funding
No grant is acknowledged in the PubMed record.
Abstract
Colorectal cancer (CRC) is a leading cause of cancer-related deaths worldwide. The Biobanking and Biomolecular Resources European Research Infrastructure (BBMRI-ERIC) established a CRC-Cohort with European coverage contributed by 26 biobanks from 12 countries. This retrospective, multi-center study contains structured and curated clinical data, supporting research on biomarkers for early detection, prognosis, and treatment. A phenotypical/clinical data model has been defined and individual-level data from 10,780 CRC patients have been collected at BBMRI-ERIC in the central data deposition service hosted as part of its services. The participating biobanks host additional data, which can be accessed on request and used to derive additional data. This mechanism has been used to extend the collected data with scans of histopathological slides to support research in artificial intelligence in digital pathology and with whole genome sequencing data to pilot a use case of the upcoming European Health Data Space (EHDS). Here we present the methodology, the quality assurance mechanisms, and the implementation of FAIR and FAIR-Health principles applied to build the CRC-Cohort.
Indexed as
Colorectal NeoplasmsBiological Specimen BanksCohort StudiesDatasets as TopicEuropeHumansRetrospective Studies
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.