Evidence map›Paper›PMID 41817666›Full record

ArticleActa otorhinolaryngologica Italica : organo ufficiale della Societa italiana di otorinolaringologia e chirurgia cervico-facciale2026

Factors affecting the quality of life of caregivers of children with tracheostomy: an assessment tool.

Ahmed Alkhateeb, Danah Alrusayyis, Aishah AlGhuneem, Hussain Alsheef, Mohammed Halawani, Noura Alanazi, Lama Alshenaifi, Anas Altammas, Hussain Alsaleh, Meshael Alkusayer and 2 more

Abstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in Acta otorhinolaryngologica Italica : organo ufficiale della Societa italiana di otorinolaringologia e chirurgia cervico-facciale, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Ahmed AlkhateebDepartment of Otolaryngology-Head and Neck Surgery, College of Medicine, Imam Abdulrahman Bin Faisal University, Dammam, Saudi Arabia.
Danah AlrusayyisDepartment of Otolaryngology-Head and Neck Surgery, Royal Medical Services-Bahrain Defence Force Hospital, Riffa, Kingdom of Bahrain.
Aishah AlGhuneemDepartment of General Surgery, Royal Medical Services-Bahrain Defence Force Hospital, Riffa, Kingdom of Bahrain.
Hussain AlsheefDepartment of Otolaryngology-Head and Neck Surgery, Network of Specialized Hospitals, Children Hospital, Dammam, Saudi Arabia.
Mohammed HalawaniPaediatric Otolaryngology Division, Department of Otolaryngology-Head and Neck Surgery, King Saud bin Abdulaziz University for Health Sciences, King Abdullah Specialized Children Hospital, National Guard, Riyadh, Saudi Arabia.
Noura AlanaziKing Saud bin Abdulaziz University for Health Sciences, College of Medicine, Riyadh, Saudi Arabia.
Lama AlshenaifiKing Saud bin Abdulaziz University for Health Sciences, College of Medicine, Riyadh, Saudi Arabia.
Anas AltammasDepartment of Otolaryngology - Head and Neck Surgery, King Faisal Specialist Hospital and Research Center, Jeddah, Saudi Arabia.
Hussain AlsalehDepartment of Otolaryngology - Head and Neck Surgery, King Faisal General Hospital, Al Ahsaa, Saudi Arabia.
Meshael AlkusayerDepartment of Otolaryngology-Head and Neck Surgery, King Saud Medical City, Riyadh, Saudi Arabia.
Bader AlaslabCollege of Medicine, King Saud bin Abdulaziz University for Health Sciences, Jeddah, Saudi Arabia.
Talal A Al-KhatibDepartment of Otolaryngology-Head and Neck Surgey, King Abdulaziz University, King Faisal Specialist Hospital and Research Center, Faculty of Medicine, Jeddah, Saudi Arabia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: Develop and validate comprehensive questionnaire scales to investigate the quality of life (QoL) of parents caring for tracheostomised children and identify potential contributing factors. Methods: This is a cross-sectional questionnaire conducted in paediatric otolaryngology clinics in 5 tertiary hospitals. Caregivers caring for children with tracheostomies at home between April 2023 and March 2024 were included. The survey items were divided into 4 distinct domains: (1) frequency of healthcare utilisation; (2) awareness and knowledge; (3) skills in tracheostomy care; and (4) caregiver's QoL. Internal consistency, construct validity, and test-retest reliability were assessed. Results: Eighty-seven caregivers completed the survey. The combined Cronbach's α coefficient was 0.81. Exploratory factor analysis values exceeded 0.75 for most items. The awareness level, ease of obtaining tracheostomy tubes, and experience in tracheostomy care showed a significant positive association with the QoL. Conclusions: TrachQoL questionnaire is a reliable tool that may help guide clinical interventions and future research. Scales for caregivers' level of knowledge and skills and accessibility to healthcare services are useful for investigating QoL in families caring for children with a tracheostomy.

Indexed as

CaregiversQuality of LifeSelf ReportTracheostomyAdultChildChild, PreschoolCross-Sectional StudiesFemaleHumansInfantMaleSurveys and Questionnairescaregiverpediatricquality of lifequestionnairetracheostomy

Identifiers

PMID41817666
PMCPMC12994104

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.