Evidence map›Paper›PMID 41814515›Full record

ArticleCommunity dentistry and oral epidemiology2026

Oral Health Care Services, Barriers and Enablers to Maintaining Good Oral Health in Motor Neurone Disease: A Scoping Review.

Mariam A Khokhar, Lucy A O'Malley, Anne-Marie Glenny, Xiaohui Chen

Abstract readScoping Review
In one paragraph

Article in Community dentistry and oral epidemiology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Mariam A KhokharDivision of Dentistry, School of Medical Sciences, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0002-5556-8301
Lucy A O'MalleyDivision of Dentistry, School of Medical Sciences, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0003-3057-3814
Anne-Marie GlennyDivision of Dentistry, School of Medical Sciences, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0003-4037-2899
Xiaohui ChenDivision of Dentistry, School of Medical Sciences, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0002-7302-8771

Funding

Motor Neurone Disease Association Glenny/Oct23/2334-794
6 · The paper itself

Abstract

objectivesThe objective of this scoping review was to map existing literature on oral health and related care in individuals with Motor Neurone Disease (MND). Specifically, the review aimed to identify barriers and facilitators to maintaining oral hygiene, summarise available clinical guidelines and patient-facing resources, and examine how oral health care is integrated within multidisciplinary management of MND.

methodsThe review focused on oral health practices without restrictions on language, publication date or study type, excluding studies unrelated to MND or oral health. Data sources included MEDLINE, Embase, CINAHL, and grey literature such as clinical guidelines and patient resources. Screening and data extraction were performed independently by two reviewers to ensure rigor.

resultsOf 847 studies screened, eleven primary studies met the inclusion criteria, comprising case reports, case series, self-reports, cross-sectional studies and letters. The grey literature search identified three clinical guidelines and eight patient information leaflets/resources. The included studies spanned diverse populations, including Amyotrophic Lateral Sclerosis (ALS) patients with varying disease subtypes and care needs, and explored oral hygiene difficulties, care barriers and unique insights from the case studies. Identified gaps highlighted the lack of integration of dental professionals into multidisciplinary care teams. Barriers such as physical limitations, caregiver dependency and limited-service accessibility were prevalent. However, caregiver involvement, multidisciplinary collaboration and innovative solutions like antimicrobial photodynamic therapy and adaptive oral aids emerged as enablers. Poor oral health was strongly associated with increased pain, aspiration pneumonia and diminished well-being, emphasising the need for targeted interventions.

conclusionEmbedding oral health management within multidisciplinary care frameworks for MND patients, enhancing caregiver training, improving access to dental services and adopting innovative strategies will improve patient outcomes and inform future research.

Indexed as

Motor Neuron DiseaseOral HealthHealth Services AccessibilityHumansOral Hygienemotor neurone diseaseoral healthoral hygienetoothbrushing

Identifiers

PMID41814515
PMCPMC13428055

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.