Evidence map›Paper›PMID 41812182›Full record

ArticleJMIR research protocols2026

A Supportive Group Intervention for Caregivers to Patients Diagnosed With Glioblastoma: Protocol for the SUGRI Study.

Sara Nordentoft, Rikke Guldager, Helle Pappot, Tiit Mathiesen, Anders Tolver, Karin Piil

Registry-linked trialAbstract read
In one paragraph

Article in JMIR research protocols, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06869577 (Project SUGRI - a Supportive Group Intervention for Caregivers to Patients Diagnosed With a Glioblastoma), which is not on this map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06869577 nanot yet recruitingnot on this map

Project SUGRI - a Supportive Group Intervention for Caregivers to Patients Diagnosed With a Glioblastoma

TypeinterventionalSponsorRigshospitalet, DenmarkRan2025 to 2025Enrolled24ConditionsCaregiver, Glioblastoma Multiform (Grade IV Astrocytoma)ArmsProject SUGRI: A supportive group intervention for caregivers to patients with a glioblastoma
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sara NordentoftCopenhagen University Hospital, Copenhagen, Denmark and Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark., Copenhagen Ø, Denmark.ORCID 0000-0001-5600-2644
Rikke GuldagerCopenhagen University Hospital, Copenhagen, Denmark. Dept. of People and Technology, Roskilde University, Roskilde, Denmark, Copenhagen University Hospital, Denmark.ORCID 0000-0003-1491-2556
Helle PappotCopenhagen University Hospital and University of Copenhagen, Copenhagen, Denmark and Department of clinical medicine, University of Copenhagen, Copenhagen, Denmark, copenhagen, Denmark.ORCID 0000-0002-3570-5372
Tiit MathiesenDepartment of Neurosurgery, Copenhagen University Hospital; Department of clinical medicine, University of Copenhagen, Copenhagen, Denmark; Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden, Copenhagen Ø, Denmark.ORCID 0000-0001-9463-1919
Anders TolverStatistics and Data Analysis, Danish Cancer Instititute, Danish Cancer Institute, Copenhagen, Denmark, Copenhagen Ø, Denmark.ORCID 0000-0003-1109-9889
Karin PiilCopenhagen University Hospital, Copenhagen and Department of clinical medicine, University of Copenhagen, Denmark, Copenhagen, Denmark.ORCID 0000-0001-7972-4674

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCaregivers to a person diagnosed with a glioblastoma often face significant responsibilities, balancing the demands of care with the complexities of the disease and treatment trajectory, while also coping with concerns and uncertainty of the future. Caregivers report unmet needs of information and support throughout the patient's disease and treatment trajectory, and they may benefit from targeted supportive care interventions.

objectiveThe aim of this study is to develop, test, and evaluate the feasibility of a supportive group intervention among caregivers to patients diagnosed with a glioblastoma.

methodsThe study consists of 3 phases with ongoing patient and public involvement (PPI). In the first phase, a systematic review will be carried out exploring the outcome of supportive group interventions for caregivers to patients diagnosed with a primary brain tumor. In the second phase, the design and development of the intervention will be conducted in cooperation with a panel of caregivers using PPI process. The third phase will include the feasibility and evaluation of the intervention. The study will be guided by the British Medical Research Council's framework for developing complex interventions. The feasibility of the intervention will be tested in reference to relevant parameters. Quantitative data in terms of questionnaires will be analyzed using descriptive statistics, and qualitative evaluation interviews will be analyzed using thematic analysis.

resultsA national panel of caregivers (N=10) has been established, and the final design of the intervention is currently developed through an ongoing PPI process. A total of 3 hospitals in Denmark have committed to participating in the recruitment for the feasibility study. Recruitment began in April 2025, and the SUGRI (Supportive Group Intervention for caregivers to patients diagnosed with a glioblastoma) intervention will undergo a feasibility assessment in a multicenter study starting in August 2025, with the final evaluation planned for April 2026.

conclusionsThis study is expected to provide necessary insights to guide caregiver initiatives, ultimately improving support for caregivers within the neuro-oncology field. A supportive group intervention offered to the caregivers has the potential to address specific caregiver needs and strengthen their supportive network. Providing caregivers with support may enhance their perceived support, strengthen family functioning, and provide them with strategies to manage caregiving challenges, ultimately benefiting both caregivers and patients.

trial registrationClinicalTrials.gov NCT06869577; https://clinicaltrials.gov/study/NCT06869577. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/81948.

Indexed as

Brain NeoplasmsCaregiversGlioblastomaSelf-Help GroupsFeasibility StudiesHumansResearch DesignSocial SupportSurveys and QuestionnairesSystematic Reviews as Topiccaregiverglioblastomagroup interventionhigh-grade gliomaneuro-oncologysupportive care

Identifiers

PMID41812182
PMCPMC13019029

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.