ArticleInternational journal of qualitative studies on health and well-being2026
Next of Kin's experiences of opportunities and limitations in user involvement: a qualitative study in a rural norwegian municipality.
Article in International journal of qualitative studies on health and well-being, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeUser involvement is a fundamental value in Norwegian health and welfare policies. However, next of kin's experiences of user involvement in municipal health and care services have not been sufficiently investigated in earlier research, despite the central role of the next of kin. The objective of this study is to explore how next of kin experience the opportunities and limitations of user involvement in municipal health and care services in a rural municipality in Norway. MATERIALS AND
methodsA qualitative study was conducted using an interpretative phenomenological analysis of interviews with 20 next-of-kin participants (nine women and eleven men aged 38 to 90).
resultsThe analysis revealed four main findings: (1) between system resistance and opportunities- the struggle for recognition among next of kin, (2) between silence and support- information as an obstacle and opportunity, (3) between paperwork and collaboration- the limitations and potential of systems, and (4) between pressure and potential- the sense of responsibility in the next of kin role.
conclusionsThe study demonstrates how relational dimensions and access to information are central to meaningful user involvement. The discrepancy between policy ambitions and everyday practice calls for strengthened, relationship-based facilitation strategies within municipal health and care services.
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