ArticleHealth expectations : an international journal of public participation in health care and health policy2026
One Eye Open: Reflections on Embedding Lived Experience in Sleep, Circadian Rhythms, and Mood Disorder Research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- One Eye Open: Reflections on Embedding Lived Experience in Sleep, Circadian Rhythms, and Mood Disorder Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
backgroundThe integration of lived experience within mental health research remains inconsistent, with many models positioning lived experience in advisory rather than embedded roles. This can limit meaningful engagement and reduce the relevance and translational impact of research. APPROACH: Drawing on an ongoing five-year Welcome Trust-funded programme investigating sleep and circadian rhythm disturbances in youth-onset mood disorders, this viewpoint reflects the development and function of a Lived Experience Working Group embedded within the Brain and Mind Centre's Youth Mental Health & Technology Team. Using this programme as a case study, we examine how co-production is implemented across research design, governance, interpretation of findings, and knowledge dissemination. KEY INSIGHTS: We outline how co-production is actioned and refined across the lifecycle of a complex research programme. We highlight lived experience contributions alongside relational and structural tensions, and practical challenges relating to inclusion, power-sharing, scalability, and translation.
conclusionEmbedding lived experience as a core form of expertise requires intentional governance structures, reflexive practices, and sustained institutional investment. This article offers practical and reflective guidance for researchers seeking to meaningfully integrate lived experience within youth mental health research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.