Evidence map›Paper›PMID 41801763›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Psychosocial Impact of Breast Density Notification Through Breast Cancer Screening: A Qualitative Interview Study.

Emma Grundtvig Gram, Claire Hudson, Nehmat Houssami, Kirsten McCaffery, Jennifer Isautier, Brooke Nickel

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Psychological Responses to Breast Density Notification: Empowerment or Anxiety?Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Emma Grundtvig GramSydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0002-8519-8217
Claire HudsonSydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0009-0000-0954-0722
Nehmat HoussamiWiser Healthcare, School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Kirsten McCafferySydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Jennifer IsautierSydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Brooke NickelSydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.

Funding

National Breast Cancer Foundation Chair in Breast Cancer Prevention EC-21-001National Health and Medical Research Council (NHMRC) Emerging Leader Research Fellowship 1194108
6 · The paper itself

Abstract

introductionBreast density notification is now implemented in the United States and parts of Australia and Canada despite limited understanding of how it impacts women and their psychosocial health. This study explored the psychosocial impact of receiving a notification of dense breasts through a population-based breast cancer screening programme.

methodsWe interviewed 19 Australian women who indicated being anxious in a survey. This survey was part of the first randomised controlled trial aiming to quantify the psychosocial impact of breast density notifications. Semi-structured interviews were conducted over the phone and analysed thematically to provide nuance and perspectives on the psychosocial impact.

resultsThe women were 42-78 years old and had diverse ethnic and educational backgrounds. Women generally perceived breast density notifications as valuable for making health decisions, citing female empowerment and the value of information in health. Women described experiences of immediate panic and worry as well as changes to their perceived individual risk of breast cancer. The breast density notification challenged women's previous perceptions of risk of breast cancer, leaving them to reinterpret their need for medical assistance. Women thus described an increased general awareness about breast cancer, which increased their likelihood of performing self-exams and attending breast screenings. DISCUSSION: While empowerment and increased vigilance in health might present positive strides for women's health, the derivative worry highlights the paradoxical value of health awareness and risk communication. This tension is important to consider in future notification practices and decisions on whether to implement breast density notification. PATIENT OR PUBLIC CONTRIBUTION: This study is based on interviews with 19 women who have lived experience with breast density information. The semi-structured interview guide allowed the women to influence what was considered important and relevant.

Indexed as

Breast DensityBreast NeoplasmsEarly Detection of CancerAdultAgedAnxietyAustraliaFemaleHealth Knowledge, Attitudes, PracticeHumansInterviews as TopicMiddle AgedQualitative Researchbreast cancerbreast cancer screeningbreast densityinterviewspsychosocialqualitative methodswomen's health

Identifiers

PMID41801763
PMCPMC12970575

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.