Evidence map›Paper›PMID 41799461›Full record

ArticleFrontiers in public health2026

Supporting Canadian families of children with disabilities: unmet needs and service gaps.

K Pozniak, A Swain, M Rodrigues, G Currie, A Doherty-Kirby, D Grahovac, J Lebsack, W Campbell, C Humphreys, S Patterson and 3 more

Abstract read
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In one paragraph

Article in Frontiers in public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

K PozniakCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
A SwainCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
M RodriguesDepartment of Psychiatry, Queen's University, Kingston, ON, Canada.
G CurrieCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
A Doherty-KirbyCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
D GrahovacCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
J LebsackCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
W CampbellCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
C HumphreysDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
S PattersonDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
S RahaDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.
J WhitleyFaculty of Education, University of Ottawa, Ottawa, ON, Canada.
O Kraus de CamargoCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Children who live with disabilities and/or chronic (or complex) medical conditions, and their families, require appropriate supports to thrive and reach their full potential. In Canada, child and family wellbeing has declined over the past years (1,2). Methods: This article highlights the second phase of a sequential exploratory research study that identified what supports and services Canadian children living with disabilities/health conditions and their parents/caregivers need and want, now and into the future. This second phase consisted of surveys with 72 parents/caregivers of children and youth with disabilities and/or healthcare needs to learn whether their needs for services and supports in different domains of life - school, community, medical, recreation, family, and financial - were being met. Results: Over half of respondents (52.5%) reported at least one unmet need (defined as "need but not receiving" services), and 16% reported between 3 and 5 unmet needs. The greatest gaps were in recreation, financial, and family supports. Individuals who were receiving services and supports were for the most part satisfied with them. However, depending on the type of service, between 6%-42% of individuals indicated that they were dissatisfied with some aspects of service. Discussion: Findings from this study highlight the importance of adopting a larger systems approach of support that will coordinate and integrate the activities of sectors such as healthcare, education, and social services across the lifespan.

Indexed as

CaregiversChildren with DisabilitiesHealth Services Needs and DemandSocial SupportAdolescentAdultCanadaChildChild, PreschoolFamily SupportFemaleHumansMaleNeeds AssessmentParentsSurveys and Questionnairescaregiver experienceschildhood disabilitycommunity servicesdisability servicesfamily support needsfinancial needhealth services

Identifiers

PMID41799461
PMCPMC12960534

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.