Evidence map›Paper›PMID 41790180›Full record

ArticleOphthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists)2026

Development of the International Classification of Functioning, Disability and Health Core Set for Vision Loss: Insights From the Lived Experience of People With Vision Loss.

Lorenzo Billiet, Hilde P A van der Aa, Dominique Van de Velde, Ferhat Esatbeyoglu, Raba Thapa, Vijaya K Gothwal, Stijn De Baets, Ruth M A van Nispen

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Article in Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Lorenzo BillietDepartment of Ophthalmology, Amsterdam UMC, location Vrije Universiteit, Amsterdam, The Netherlands. l.billiet@amsterdamumc.nl.
Hilde P A van der AaDepartment of Ophthalmology, Amsterdam UMC, location Vrije Universiteit, Amsterdam, The Netherlands.
Dominique Van de VeldeDepartment of Rehabilitation Sciences - Occupational Therapy Research Group, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
Ferhat EsatbeyogluDepartment of Physical Education and Sport Teaching, Faculty of Sport Sciences, Yozgat Bozok University, Yozgat, Turkey.
Raba ThapaTilganga Institute of Ophthalmology, Kathmandu, Nepal.
Vijaya K GothwalMeera and L B Deshpande Centre for Sight Enhancement, Institute for Vision Rehabilitation, Hyderabad, India.
Stijn De BaetsDepartment of Rehabilitation Sciences - Occupational Therapy Research Group, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
Ruth M A van NispenDepartment of Ophthalmology, Amsterdam UMC, location Vrije Universiteit, Amsterdam, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe global increase in life expectancy has led to more visual impairment, significantly impacting the quality of life and daily activities of individuals living across the world's continents. This study aims to develop an ICF Core Set Vision Loss for the adult life span, providing a global perspective on the functional challenges faced by individuals with vision impairment. As part of its development, the aim was to understand the impact of vision loss on the lives and functioning of individuals with vision impairment from their own perspectives.

methodA cross-sectional qualitative study was performed, using a thematic analysis of data that was gathered through an online survey across the six World Health Organization regions and in-depth interviews. Meaningful concepts were linked to the ICF categories based on available linking rules.

resultsAnalyses of the online surveys with 663 participants in 59 countries and 100 in-depth interviews in Nepal and India resulted in 7652 meaningful concepts that could be linked to 148 ICF categories: 9% related to body functions and structures, 49% to activities and participation and 42% to environmental factors. Key findings regarding body functions and structures included a focus on emotional functions, confidence and energy levels. For activities and participation, major concerns were recreation, transportation and employment. Environmental factors highlighted the importance of family and technology.

conclusionThis study underscores the complex challenges faced by individuals with vision loss, encompassing emotional, psychological, environmental and participation-related aspects. These insights highlight the need for tailored assessments, interventions and comprehensive support systems. By comparing these findings with those from other preparatory studies, these results contribute to a deeper understanding of the lived experience of vision loss and provide an essential step in the future development of the ICF Core Set for Vision Loss.

Indexed as

Activities of Daily LivingBlindnessDisability EvaluationInternational Classification of Functioning, Disability and HealthPersons with Visual DisabilitiesQuality of LifeVision DisordersVision, LowAdultAgedCross-Sectional StudiesFemaleHumansMaleMiddle AgedQualitative ResearchCore SetDisability and healthInternational Classification of FunctioningLow visionPatient perspectiveVision impairment

Identifiers

PMID41790180
PMCPMC13369693

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.