ArticleAutism in adulthood2024
Evaluation of Equity in Hospice Care Utilization Among Medicare-Enrolled Autistic Older Adults.
Article in Autism in adulthood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Implementing a Co-produced Curriculum for Neurodivergent Individuals in the Workplace.Journal of autism and developmental disorders · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
Background: Better identification of autistic people and increased life expectancy for people with intellectual and developmental disabilities have given rise to an urgent need to better understand end-of-life care in autistic people. We compared hospice utilization of autistic older adults to non-autistic older adults and examined if known inequities in hospice utilization among the general population are exacerbated among autistic older adults. Methods: We analyzed hospice claims from Medicare, which insures Americans over 65 years and covers hospice costs. Our sample included 5,468 autistic older adults and 10,934 matched population comparison older adults who died during 2013-2021. We used multivariable logistic regression to compare these groups on the odds of any, early, intermediate, and late hospice utilization. We defined early hospice utilization as at least 28 days before death, intermediate as 4-27 days before death, and late as within 3 days of death. Interaction terms were used to assess whether effects were modified by beneficiary's sex, race, or rurality. In a sensitivity analysis, we repeated our analyses in unmatched samples. Results: The autistic older adult and matched population comparison groups had similar odds of any hospice utilization (OR: 1.05; 95% CI: 0.98-1.13), early (OR: 1.01; 95% CI: 0.91-1.11), intermediate (OR: 1.03; 95% CI: 0.95-1.13), and late hospice (OR: 1.07; 95% CI: 0.96-1.19). In our models evaluating the impact of other known inequities, we did not find significant interactions between autism diagnostic status and sex, race, or rurality. Results were similar in the unmatched samples. Conclusion: Given the body of literature documenting health disparities in autistic people, our findings are heartening, suggesting Medicare-enrolled autistic older adults experience similar receipt and timing of hospice as non-autistic peers. Our findings highlight the potential power of health policies that provide zero cost, universal benefits to Americans in reducing healthcare utilization disparities among autistic people.
Identifiers
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Registered trials
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