ArticleJournal of neuro-oncology2026
Adolescents and young adults with predominantly low grade primary central nervous system tumors: patient reported socioeconomic outcomes and health-related quality of life ten years after diagnosis.
Article in Journal of neuro-oncology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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18 authors.
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Abstract
contextAdolescents and young adults (AYAs) diagnosed with primary central nervous system tumors (PCNST) often face long-term socio-economic challenges and reduced health-related quality of life (HRQoL).
objectiveThis study aims to evaluate the long-term socio-economic outcomes and HRQoL of AYAs more than ten years after diagnosis.
methodsA national, retrospective study conducted between 2019 and 2022, including AYAs aged 15–25 diagnosed with PCNST in 2009–2010, identified through the French Brain Tumor Database. Socio-economic data and HRQoL were assessed using a structured questionnaire and the Short Form-12 (SF-12) Health Survey. Descriptive statistical analyses were performed.
resultsQuestionnaires were available for 70 patients. Educational level improved over time, but 11.4% still lacked a diploma. While 90% were employed, 45% earned €1500–€2500 per month, and 36.7% earned less than €1500 per month. Workplace accommodations were rarely implemented despite needs. HRQoL assessments showed high physical functioning scores (mean: 85.61), but low vitality scores (mean: 35.82). The mean Physical Component Summary and the mean Mental Component Summary are lower to the general population aged 18–44 in France, respectively 50.6 (SD: 9.1) and 43.6 (SD:12.25) showing a poor physical and a very poor mental HRQoL for AYAs survivors. DISCUSSION: Despite resilience in education and employment, AYAs surviving PCNST face persistent socio-economic difficulties and poor mental HRQoL. Tailored interventions, including increased awareness of support resources and comprehensive care strategies, are needed to improve their long-term outcomes and facilitate better integration into society. CLINICAL TRIAL NUMBER: Not applicable.
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