Evidence map›Paper›PMID 41784473›Full record

ArticleClinical rehabilitation2026

Development of an easy-read version of the Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ).

Lauren R Hepworth, Claire Howard, Janet Rockliffe, Jamie J Kirkham, Gill Pearl, Fiona J Rowe

Abstract read
In one paragraph

Article in Clinical rehabilitation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lauren R HepworthInstitute of Population Health, University of Liverpool, Liverpool, UK.ORCID 0000-0001-8542-9815
Claire HowardInstitute of Population Health, University of Liverpool, Liverpool, UK.ORCID 0000-0002-2806-9144
Janet RockliffeVISable, patient and public representative, Liverpool, UK.
Jamie J KirkhamCentre for Biostatistics, The University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.ORCID 0000-0003-2579-9325
Gill PearlSpeakeasy, Bury, UK.
Fiona J RoweInstitute of Population Health, University of Liverpool, Liverpool, UK.ORCID 0000-0001-9210-9131

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

ObjectiveThe Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ) was developed to measure the impact of post-brain injury visual impairment. Communication and cognitive impairments are common brain injury sequelae and a barrier to completing standard patient reported outcome measures. The objective of this study was to develop and refine an easy-read version in order to meet recommendations to promote self-reporting.DesignEasy-read version development involved stakeholder input at several meetings. An iterative refinement process was used, involving a cognitive interview, until no new issues were identified.ParticipantsStroke survivors with visual impairment and/or aphasia and relevant healthcare professional were involved in the development stage. The clinical study recruited 12 stroke survivors with visual impairment.Main measuresParticipants completed the easy-read and standard versions. The researcher documented observations and time taken. Analysis assessed association and agreement between the two versions.ResultsDevelopment considered the structure, image selection and key words. Four iterations were used before five consecutive participants reported no new issues. Image amendments involved replacing four, revising four and adding three across eight of the 13 items. A preference for the easy-read version was reported by 45.5% completing both questionnaires (n = 11). A significant, strong positive correlation was found between the easy-read and standard version total scores. Weighted Kappa found significant agreement between 12 items.ConclusionsThe easy-read version, using images to support the question wording, will increase accessibility for brain injury survivors with communication and/or cognitive difficulties. It is acceptable and further evaluation of this version is now required.

Indexed as

Brain InjuriesQuality of LifeStrokeVision DisordersAdultAgedFemaleHumansMaleMiddle AgedPsychometricsReproducibility of ResultsSurveys and Questionnairesaccessibilityacquired brain injuryaphasiacognitive impairmentQuality of lifevisual impairment

Identifiers

PMID41784473
PMCPMC13428064

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.