Evidence map›Paper›PMID 41783122›Full record

ReviewPatient preference and adherence2026

The Information Needs of Breast Cancer Patients at All Stages of Their Journey: A Scoping Review.

Ayu Prawesti Priambodo, Yanny Trisyani, Aan Nuraeni, Anastasia Anna, Firman Sugiharto

Abstract readReview
In one paragraph

Review in Patient preference and adherence, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Ayu Prawesti PriambodoDepartment of Critical Care and Emergency Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, Indonesia.ORCID 0000-0002-8611-824X
Yanny TrisyaniDepartment of Critical Care and Emergency Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, Indonesia.ORCID 0000-0002-4862-4950
Aan NuraeniDepartment of Critical Care and Emergency Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, Indonesia.ORCID 0000-0003-1466-7394
Anastasia AnnaDepartment of Critical Care and Emergency Nursing, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, Indonesia.
Firman SugihartoDoctoral Program, Faculty of Nursing, Universitas Padjadjaran, Sumedang, West Java, Indonesia.ORCID 0000-0003-4223-9573

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Breast cancer is the most commonly diagnosed cancer and the leading cause of cancer-related mortality among women worldwide. Adequate and timely information is essential to reduce anxiety, uncertainty, and psychological distress among breast cancer patients. However, many women report dissatisfaction with the information they receive, and evidence addressing patients' information needs across the entire disease continuum remains limited. Purpose: This scoping review aimed to synthesize evidence of the information needs among breast cancer patients across different phases of the cancer continuum, from diagnosis to post-treatment survivorship. Methods: A scoping review was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). Studies were identified through systematic searches of EBSCOhost, PubMed, Scopus, ScienceDirect, and Taylor & Francis, supplemented by Google Scholar searches, reference list screening, and expert network recommendations. Study selection followed the Population-Concept-Context (PCC) framework, focusing on women with breast cancer, information needs, and stages of the cancer continuum. Results: Forty eligible studies were included. Four major themes of informational needs were identified across the disease trajectory. In the diagnostic phase, patients primarily sought information on disease characteristics, prognosis, treatment options, and emotional support. During treatment, information needs focused on treatment management, self-care, lifestyle modification, and psychosocial support. In the post-treatment and survivorship phase, patients emphasized long-term follow-up, recurrence prevention, and quality-of-life issues. Across all phases, patients preferred trusted healthcare professionals and multimodal information delivery formats. Conclusion: Breast cancer patients have diverse and evolving information needs throughout the cancer continuum. Addressing these needs through structured, culturally sensitive, and patient-centered information strategies is essential to reduce anxiety, support informed decision-making, and improve quality of care.

Indexed as

breast cancer patientshealth informationthe information needs

Identifiers

PMID41783122
PMCPMC12956059

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.