Evidence map›Paper›PMID 41783039›Full record

ArticleAlzheimer's & dementia (Amsterdam, Netherlands)

The vicious cycle of stigma: A multi-level analysis of dementia help seeking and care in Malaysia.

Jennifer N W Lim, Nurul Syasya Mohd Ridzwan Goh, Chia Zhen Tan, Thurgambikai Murugayah, Ponnusamy Subramaniam

Abstract read
In one paragraph

Article in Alzheimer's & dementia (Amsterdam, Netherlands). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

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No citing paper in PubMed yet.

4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jennifer N W LimSchool of Health and Society Faculty of Education, Health and Wellbeing City Campus University of Wolverhampton Wolverhampton UK.ORCID https://orcid.org/0000-0001-7696-949X
Nurul Syasya Mohd Ridzwan GohCentre for Healthy Ageing and Wellbeing (H-CARE) Faculty of Health Sciences Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz Kuala Lumpur Malaysia.
Chia Zhen TanClinical Psychology and Behavioral Health Program Faculty of Health Sciences Universiti Kebangsaan Malaysia Jalan Raja Muda Abdul Aziz Kuala Lumpur Malaysia.
Thurgambikai MurugayahClinical Psychology and Behavioral Health Program Faculty of Health Sciences Universiti Kebangsaan Malaysia Jalan Raja Muda Abdul Aziz Kuala Lumpur Malaysia.
Ponnusamy SubramaniamCentre for Healthy Ageing and Wellbeing (H-CARE) Faculty of Health Sciences Universiti Kebangsaan Malaysia, Jalan Raja Muda Abdul Aziz Kuala Lumpur Malaysia.ORCID https://orcid.org/0000-0002-2361-4780

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundDementia stigma impedes timely diagnosis in low- and middle-income countries. This study examines how cultural, social, and structural factors influence stigma in Malaysia's multiethnic context.

methodsIn-depth interviews with 18 caregivers in urban and rural Malaysia were analyzed thematically using the Integrated Dementia Stigma Framework.

resultsStigma forms a self-reinforcing cycle. Families attribute symptoms to "madness" or normal aging, prompting concealment (micro). Cultural norms like filial piety prescribe family caregiving as a moral duty, reinforcing isolation (meso). Structural stigma, including clinical dismissal and service scarcity, validates family inaction and worsens urban-rural inequities (macro). Two interlocking pathways emerge: a DISCUSSION: Dementia stigma in Malaysia drives low diagnosis rates. Multilevel interventions integrating public education, culturally appropriate community support, and healthcare reform are essential to break the cycle.

Indexed as

DementiaIntegrated Dementia Stigma FrameworkKlang ValleyMalaysiaMultilevel stigma cycleSabah

Identifiers

PMID41783039
PMCPMC12953052

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LicenceCC BY-NC-ND
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.