Evidence map›Paper›PMID 41781964›Full record

ArticleBMC palliative care2026

Family perspectives on high-quality MAiD service and delivery: a cross-Canada qualitative descriptive study.

Christina Rumsey, Daniel W McKennitt, Tania Stafinski, Devidas Menon

Abstract read
In one paragraph

Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Christina RumseySchool of Public Health, University of Alberta, 4-347 Dianne and Irving Kipnes Health Research Academy, 11405 87 Ave NW, Edmonton, AB T6G 1C9, Canada. crumsey@ualberta.ca.ORCID http://orcid.org/0009-0008-0436-1053
Daniel W McKennittSchool of Public Health, University of Alberta, 4-347 Dianne and Irving Kipnes Health Research Academy, 11405 87 Ave NW, Edmonton, AB T6G 1C9, Canada.ORCID http://orcid.org/0000-0001-7859-2761
Tania StafinskiSchool of Public Health, University of Alberta, 4-343 Dianne and Irving Kipnes Health Research Academy, 11405 87 Ave NW, Edmonton, T6G 1C9, Canada.ORCID http://orcid.org/0000-0001-6679-7823
Devidas MenonSchool of Public Health, University of Alberta, 4-341 Dianne and Irving Kipnes Health Research Academy, 11405 87 Ave NW, Edmonton, AB T6G 1C9, Canada.ORCID http://orcid.org/0000-0002-4172-8634

Funding

Health Canada #2223-HQ-000267
6 · The paper itself

Abstract

backgroundMedical assistance in dying (MAiD) has been legal throughout Canada since 2016. Legislation has evolved to expand eligibility criteria to non-foreseeable natural deaths. A sole underlying medical condition of a mental illness will be included in March of 2027. Provinces and territories are responsible for the development and ongoing improvements to MAiD service and delivery. We aimed to understand the experiences of families and friends of recipients of MAiD and elicit recommendations to improve the quality of MAiD service and delivery and possibly inform future legislation.

methodsA qualitative descriptive design was utilized to best capture the personal experiences of family and friends of MAiD recipients in Canada. Social media posts and information sharing through end-of-life organizations invited individuals who self-referred for MAiD and family members to participate. Virtual interviews were completed using a semi-structured interview guide. Participants were specifically asked to provide recommendations for changes or improvements to MAiD service and delivery based on their experiences. Data was transcribed and a five-phase qualitative approach to coding and thematic analysis was employed.

resultsThirty-four family and friends from five provinces in Canada participated in the study. They shared their experiences of supporting 35 individuals who received MAiD. Three main themes were identified including the decision to have MAiD, emotional complexity and challenges with the MAiD process. Ten sub-themes identified were symptom burden, loss of autonomy and control, fear of future suffering, system barriers to care, accessibility, respectful and compassionate care, continuity of care, comprehensiveness and accuracy of assessments, guidance and information sharing and emotional support. Participant recommendations for improvements to MAiD service and delivery in Canada are included in this paper.

conclusionsParticipant experiences offer insight into ensuring early intervention that is holistic in nature is provided by a highly skilled healthcare team to individuals who request MAiD. This includes involving and supporting family members; addressing unmet care needs; and offering emotional support, information and guidance throughout the MAiD process.

Indexed as

FamilyQuality of Health CareSuicide, AssistedAdultAgedCanadaFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchCanadaFamilyMedical assistance in dyingQualitative researchQuality improvementService and delivery

Identifiers

PMID41781964
PMCPMC12983891

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.