Evidence map›Paper›PMID 41772605›Full record

ArticleInternational journal of health geographics2026

Ethical guidelines for geoprivacy: a framework for researchers and ethics committees.

Milad Malekzadeh, Yan Kestens, Justine I Blanford, Camille Perchoux, Mir Abolfazl Mostafavi, Grant McKenzie, Eun-Kyeong Kim

Abstract read
In one paragraph

Article in International journal of health geographics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Milad MalekzadehDigital Geography Lab, Department of Geosciences and Geography, University of Helsinki, Helsinki, Finland. milad.malekzadeh@helsinki.fi.
Yan KestensÉcole de santé publique de l', Université de Montréal & Centre de recherche en santé publique, Montréal, Québec, Canada.
Justine I BlanfordFaculty of Geo-Information Science and Earth Observation, University of Twente, Enschede, Netherlands.
Camille PerchouxLuxembourg Institute of Socio-Economic Research (LISER), 11 Porte des Sciences, L-4366, Esch-sur-Alzette, Luxembourg.
Mir Abolfazl MostafaviCentre de recherche en données et en Intelligence géospatiale, Université Laval, Quebec City, Québec, Canada.
Grant McKenzieDepartment of Geography, McGill University, Montreal, Canada.
Eun-Kyeong KimLuxembourg Institute of Socio-Economic Research (LISER), 11 Porte des Sciences, L-4366, Esch-sur-Alzette, Luxembourg. eun-kyeong.kim@liser.lu.ORCID 0000-0001-7986-8002

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe increasing use of geographic data about individuals in health and social research raises ethical challenges that extend beyond existing legal frameworks. While regulations such as data protection laws define boundaries, they rarely provide researchers with sufficient practical guidance for addressing geoprivacy risks.

methodsWe developed a structured, reflexive ethical framework tailored for research involving human-centered geographic data. The framework was designed using a lifecycle approach and informed by both a review of existing literature and the expertise of the multidisciplinary author team. It organizes ethical considerations into five research phases: data collection, storage, sharing, analysis, and results dissemination. To enhance usability, we translated these considerations into 60 guiding questions, each assigned an importance level (high, moderate, or low). An ethical review applicability matrix was also introduced to help determine the level of ethical scrutiny required, based on study characteristics such as data type, granularity, linkage potential, and participant vulnerability.

resultsThe framework offers a practical and scalable tool for embedding ethical reflection into research processes. It supports proportionate ethical review by aligning the sensitivity of specific research practices with the corresponding importance of guiding questions. To demonstrate its adaptability, we provide two case studies in the supplementary materials that apply the framework to different research scenarios with varying levels of geoprivacy sensitivity.

conclusionsBy encouraging early and context-aware engagement with ethical risks, this framework safeguards participant dignity, fosters transparency, and advances ethically responsible research involving geographic data. It equips both researchers and ethics committees with a systematic approach for addressing geoprivacy challenges across diverse health and social science contexts.

Indexed as

Ethics Committees, ResearchGuidelines as TopicResearch PersonnelHumansData protection and consentEthical data governanceGeographic data ethicsGeoprivacyHuman-centered spatial research

Identifiers

PMID41772605
PMCPMC13092162

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.