Evidence map›Paper›PMID 41770849›Full record

Trial reportLupus2026

The intervention to improve quality of life for African American lupus patients project: Incorporating the element of choice to improve disease self-management and quality of life: A randomized controlled study.

Edith M Williams, Jerik Leung, Larisa Bruner, Jiajia Zhang, Jie Zhou, Jim C Oates

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Lupus, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Edith M WilliamsDepartment of Public Health Sciences, University of Rochester Medical Center, Rochester, NY, USA.
Jerik LeungDepartment of Behavioral, Social, and Health Education Sciences, Rollins School of Public Health, Emory University, Atlanta, GA, USA.ORCID 0000-0001-5344-3102
Larisa BrunerInherited Excellence Institute, Oklahoma City, OK, USA.
Jiajia ZhangDepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, USA.
Jie ZhouDepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, USA.
Jim C OatesDivision of Rheumatology and Immunology, College of Medicine, Medical University of South Carolina, Charleston, SC, USA.

Funding

Resource CoreP30AR072582 · NIAMS · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI OATES, JAMES C · 2017 to 2025
$7.0M
Intervention to Improve Quality of Life for African-American Lupus Patients (IQAN)K01AR060026 · NIAMS · UNIVERSITY OF SOUTH CAROLINA AT COLUMBIA · PI WILLIAMS, EDITH MARIE · 2012 to 2015
$448k
Superwoman Coping: A multi-level analysis of self-management behaviors and cardiovascular disease risk among Black women with systemic lupus erythematosusF31AR084335 · NIAMS · EMORY UNIVERSITY · PI Jerik Leung · 2024 to 2026
$149k
NIAMS NIH HHS F31 AR084335NIAMS NIH HHS K01 AR060026NIAMS NIH HHS P30 AR072582
6 · The paper itself

Abstract

BackgroundThe Intervention to Improve Quality of life for African American lupus patients (IQAN) Project is a three armed randomized, wait list-controlled trial focused on providing a variety of self-management tools to participants. We focus on African American individuals with lupus due to the increased morbidity and mortality in this population.PurposeTo examine whether a unique 'a-la-carte' self-management program improved quality of life, decreased depression, and reduced perceived and biological indicators of stress in African American lupus patients.MethodsIndividualized intervention plans (IIP's) offered 1-4 options, including a mail-delivered arthritis kit, message board, support group, and enrollment in a self-management program. A 'set menu' control condition included a standardized chronic disease self-management program only, and a control condition was usual care (UC). Validated measures of stress, depression, and quality of life were collected in all patients before and after intervention activities. To evaluate changes between baseline and post-intervention, compact scores were compared across groups, using two-sample t-tests.ResultsImprovements were observed in areas of stress management and pain management (

Indexed as

Black or African AmericanLupus Erythematosus, SystemicQuality of LifeSelf-ManagementAdultDepressionFemaleHumansMaleMiddle AgedPain ManagementSelf CareStress, Psychologicalblack or African Americanclinical trialLupus erythematosusquality of lifeself-managementsystemic

Identifiers

PMID41770849
PMCPMC13487562

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.