Evidence map›Paper›PMID 41767163›Full record

ArticleJournal of multimorbidity and comorbidity

Development of the Short Treatment Burden Questionnaire (STBQ) including a Global Treatment Burden Question (GTBQ): Cognitive interviews with adults living with multimorbidity.

Rebecca Goulding, Polly Duncan, Anastasiia G Kovalenko, Chloe Gamlin, Simon Chilcott, Simon D S Fraser, Jose M Valderas, Rachel Johnson

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of multimorbidity and comorbidity. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rebecca GouldingDivision of Musculoskeletal and Dermatological Sciences, School of Biological Sciences, Faculty of Biology Medicine and Health, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0003-0716-5126
Polly DuncanCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID https://orcid.org/0000-0002-2244-3254
Anastasiia G KovalenkoCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.
Chloe GamlinCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID https://orcid.org/0009-0006-5555-1469
Simon ChilcottCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.
Simon D S FraserSchool of Primary Care, Population Science and Medical Education, Faculty of Medicine, University of Southampton, Southampton, UK.ORCID https://orcid.org/0000-0002-4172-4406
Jose M ValderasCentre for Research in Health Systems Performance, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.
Rachel JohnsonCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: A short patient reported outcome measure (PROM) could help identify people experiencing high treatment burden. Objectives: To develop the Short Treatment Burden Questionnaire (STBQ), a novel PROM comprising a Global Treatment Burden Question (GTBQ) and items to identify areas of difficulty; improve its understandability and face validity; and explore patient views on using it in clinical practice. Methods: Prototype development drew on the validated Multimorbidity Treatment Burden Questionnaire (MTBQ) and a single-item global measure. Adults, aged 18-65, living with multimorbidity were recruited from English general practices. Three rounds of cognitive interviews, with think-aloud and prompts, were conducted (July-October 2023). After each round, data were analysed, suggested changes and uncertainties discussed and modifications made. Public contributors were involved throughout. Results: Participants (n = 15) were predominantly female (67%) and White British (87%). Issues were identified with the layout, instructions, and order and wording of response options, with some aspects interpreted in unintended ways. The number of issues and consequent changes reduced with each round of interviews. Participants highlighted potential benefits of using the STBQ in clinical practice, including encouraging patients to mention things they may not otherwise bring up. They suggested the STBQ could inform both individual patient care and practice-level service improvement. Conclusions: Robust qualitative methods were used to develop a novel PROM for use in clinical practice and research. The STBQ demonstrated face validity and was relatively easy to use. Further work has been undertaken to validate the GTBQ. Guidance will outline how the STBQ could support patient care.

Indexed as

multimorbiditypatient reported outcome measureprimary carequalitative researchquestionnairetreatment burden

Identifiers

PMID41767163
PMCPMC12946401

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.