Evidence map›Paper›PMID 41766190›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Co-Creating Publicly Available Resources to Increase Awareness of and Support for Long Covid Among Ethnic Minority Communities.

Nina Smyth, Ammarah Ahmad, Samina Begum, Ashish Chaudhry, Sophie Clark, Alexa Wright, Karl Gimblett, Damien Ridge, Carolyn A Chew-Graham, Dipesh Gopal and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Nina SmythPsychology, School of Social Sciences, University of Westminster, London, UK.ORCID 0000-0001-9047-6958
Ammarah AhmadAdvisor member on public and patient advisory group, London, UK.
Samina BegumAdvisor member on public and patient advisory group, London, UK.
Ashish ChaudhryAdvisor member on public and patient advisory group, London, UK.
Sophie ClarkAdvisor member on public and patient advisory group, London, UK.
Alexa WrightIndependent Artist, Emerita Fellow, School of Humanities, University of Westminster, London, UK.
Karl GimblettSchool of Medicine, Faculty of Medicine and Health Sciences, Keele University, Keele, UK.
Damien RidgePsychology, School of Social Sciences, University of Westminster, London, UK.ORCID 0000-0001-9245-5958
Carolyn A Chew-GrahamSchool of Medicine, Faculty of Medicine and Health Sciences, Keele University, Keele, UK.ORCID 0000-0002-9722-9981
Dipesh GopalWolfson Institute of Population Health, Queen Mary University, London, UK.
Nisreen A AlwanSchool of Primary Care, Population Sciences and Medical Education, Faculty of Medicine, University of Southampton, Southampton, UK.ORCID 0000-0002-4134-8463
Tom KingstoneSchool of Medicine, Faculty of Medicine and Health Sciences, Keele University, Keele, UK.

Funding

National Institute for Health Research NIHR203106
6 · The paper itself

Abstract

introductionStigma and discrimination make healthcare challenging for people living with Long Covid, especially those from ethnic minority groups. Since their experiences are under-researched and may differ from other groups, it is crucial that healthcare guidance is informed by the lived experiences of diverse groups.

methodsFindings from underpinning research (hearing from the unheard: Impact of Long Covid in Black and minority ethnic groups in the UK: HI-COVE - 31 interviews with ethnic minority individuals living with Long Covid) informed the development of two resources aimed at raising awareness of the challenges faced by ethnic minority groups and offer ways to best support these groups. People living with Long Covid (N = 4) provided feedback on the two resources. Feedback was guided by a topic guide. Minimal changes were made following feedback.

resultsResource 1: Four participants who took part in the underpinning research, worked with an Artist (AW) to curate artwork. The artwork created was a video called 'Still Looking for Answers' https://www.youtube.com/watch?v=GDt-Ro1Cql8&t=1s. It comprises anonymised patient narratives and imagery (performed by actors) and a soundscape to convey ethnic minority lived experiences of Long Covid. Resource 2: an online learning tool called 'Health and Social Care PROfessional-Long Covid': H-Pro-LC tool: https://clineduniverse.org/hicove/story_html5.html shares challenges people from ethnic minority groups face when accessing healthcare for Long Covid. The resource includes guidance on supporting people, particularly people from ethnic minority backgrounds, presenting to primary care with (probable) symptoms of Long Covid.

conclusionsThese publicly available resources aim to raise awareness of Long Covid: they encourage viewers to emotionally connect with experiences of Long Covid as well as offer ways to support people living with the condition, particularly among people from ethnic minority groups. PATIENT AND PUBLIC INVOLVEMENT AND ENGAGEMENT: The underpinning research of these resources were extensively informed by both patient (N = 7) and expert advisory groups (N = 6). Co-creation approaches (through workshops, meetings and written feedback) from people living with Long Covid, carers, stakeholders and members of the public informed the design, development, innovation and impact of resources developed. People with lived experience of Long Covid provided feedback on the resources developed in this study.

Indexed as

EthnicityMinority GroupsPost-Acute COVID-19 SyndromeHumansPandemicsSocial StigmaUnited Kingdomart communicationcreative methodsethnic minoritieshealthcareLong Covidpost‐acute COVID‐19 syndromeprimary care

Identifiers

PMID41766190
PMCPMC12950822

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.