Evidence map›Paper›PMID 41761844›Full record

ArticleAmerican journal of Alzheimer's disease and other dementias

Validating the Use of TBI-CareQOL Measures in Caregivers of People Living With Dementia.

Noelle E Carlozzi, Madison Fansher, Jonathan P Troost, Jennifer A Miner, Sophia Tsuker, Amanda N Leggett

Abstract readValidation Study
In one paragraph

Article in American journal of Alzheimer's disease and other dementias. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Noelle E CarlozziDepartment of Physical Medicine and Rehabilitation, Department of Surgery, and Survey Research Center, University of Michigan, Ann Arbor, MI, USA.ORCID 0000-0003-0439-9429
Madison FansherDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.ORCID 0000-0003-0009-4337
Jonathan P TroostMichigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, MI, USA.ORCID 0000-0002-1183-8330
Jennifer A MinerDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.ORCID 0000-0003-2722-1121
Sophia TsukerInstitute of Gerontology, Wayne State University, Detroit, MI, USA.ORCID 0009-0005-4757-9827
Amanda N LeggettInstitute of Gerontology and Department of Psychology, Wayne State University, Detroit, MI, USA.ORCID 0000-0001-7895-3862

Funding

Quality of Life in Caregivers of Traumatic Brain Injury: The TBI-CareQOLR01NR013658 · NINR · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI CARLOZZI, NOELLE E. · 2012 to 2024
$6.0M
NINR NIH HHS R01 NR013658
6 · The paper itself

Abstract

Understanding the clinical utility of patient-reported outcome measures is critical for using these measures in research and clinical practice. Therefore, the purpose of this analysis was to establish the psychometric properties of three TBI-CareQOL measures in caregivers of people living with Alzheimer's disease or Alzheimer's disease-related dementias (ADRD): Caregiver Strain, Caregiver-Specific Anxiety, and Feeling Trapped. One-hundred-and-ninety-seven caregivers of individuals living with ADRD (n=197) completed three TBI-CareQOL measures, three additional measures to establish convergent and discriminant validity (NIH Toolbox Perceived Stress, Dementia Management Strategies Scale, PROMIS Pain Intensity), and the Dementia Severity Rating Scale to establish known groups validity. Internal consistency and test-retest reliability of the TBI-CareQOL measures were supported (alphas >.70). The TBI-CareQOL measures were also free of floor and ceiling effects. Convergent, discriminant, and known groups validity were also supported. Taken together, findings support the clinical utility of the TBI-CareQOL measures for caregivers of people living with ADRD.

Indexed as

Alzheimer DiseaseCaregiversDementiaPatient Reported Outcome MeasuresPsychometricsQuality of LifeAgedAged, 80 and overFemaleHumansMaleMiddle AgedReproducibility of ResultsStress, PsychologicalSurveys and QuestionnairesAlzheimer’s diseasecaregiver burdenHRQOLinformal caregiverspatient-reported outcomepsychometrics

Identifiers

PMID41761844
PMCPMC12954047

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.