ArticleScandinavian journal of caring sciences2026
Patients' Experiences and Unmet Needs in Atrial Fibrillation: Implications for Person-Centred Care.
Article in Scandinavian journal of caring sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundAtrial fibrillation is a common cardiac arrhythmia that significantly impacts patients' daily lives. While clinical management is well established, and despite growing interest in patient-centred care, the perception and emotional response of patients with AF remain less explored.
objectiveThis study aimed to explore the experiences and perceived needs of patients with atrial fibrillation.
methodsA qualitative descriptive design was employed. Twenty adult patients diagnosed with AF and no cognitive impairment were recruited from a public hospital in northern Portugal. Semi-structured interviews were conducted, audio-recorded, transcribed verbatim and analysed using thematic content analysis supported by NVivo software. Themes were developed inductively and refined through iterative coding and discussion.
resultsFive main themes were identified: (1) Dealing with a New Normal; (2) Embracing the Illness Journey; (3) Walking the Illness Journey; (4) Unmet Healthcare Needs, and (5) Improving Supportive Services.
conclusionPatients with atrial fibrillation face challenges that extend beyond symptom management. Findings underscore the importance of integrated, theory-informed, patient-centred approaches to support individuals living with atrial fibrillation across diverse contexts.
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