Evidence map›Paper›PMID 41759991›Full record

ArticleJournal of pain and symptom management2026

Guided Goals of Care Conversations Reveal Evolving, Personalized Priorities.

Katherine Doyon, Amanda Glickman, Lubin Deng, Jessica Ma, Sharon E Bigger, David B Bekelman

Abstract read
In one paragraph

Article in Journal of pain and symptom management, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Katherine DoyonSchool of Nursing (K.D.), Boise State University, Boise, Idaho, USA. Electronic address: katherinedoyon@boisestate.edu.
Amanda GlickmanPerlmutter Cancer Center, Department of Psychiatry (A.G.), New York University Grossman School of Medicine, New York, New York, USA.
Lubin DengCarver College of Medicine (L.D.), University of Iowa, Iowa City, Iowa, USA.
Jessica MaDepartment of Medicine (J.M.), Duke University School of Medicine, Durham, North Carolina, USA; Geriatrics and Extended Care (J.M.), Durham VA Health System, Durham, North Carolina, USA.
Sharon E BiggerCollege of Nursing (S.E.B.), University of Utah, Salt Lake City, Utah, USA.
David B BekelmanDepartment of Medicine, Department of Veterans Affairs (D.B.B.), Eastern Colorado Health Care System, Aurora, Colorado, USA; Division of General Internal Medicine (D.B.B.), University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.

Funding

University of Michigan (UM) HEAL Initiative National K12 Clinical Pain Career Development Program (UM-HCPDP)K12NS130673 · NINDS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Daniel J Clauw, Steven Edward Harte · 2022 to 2026
$12.5M
Multidisciplinary Research Training in Palliative CareT32AG044296 · NIA · UNIVERSITY OF COLORADO DENVER · PI STACY M FISCHER, JEAN S KUTNER · 2014 to 2026
$3.3M
LEADing End-of-Life Dementia Care ConversationsR01AG069033 · NIA · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI KARA Bottiggi Dassel · 2022 to 2026
$3.1M
Pathways for Physician Scientist Training in Psychiatric ResearchR25MH125758 · NIMH · UNIVERSITY OF COLORADO DENVER · PI C. Neill EPPERSON, Susan Kay Mikulich-Gilbertson · 2021 to 2026
$980k
NIA NIH HHS R01 AG069033NIA NIH HHS T32 AG044296NIMH NIH HHS R25 MH125758NINDS NIH HHS K12 NS130673
6 · The paper itself

Abstract

contextUnderstanding the dynamics of goals of care conversations between patients, nurses, and social workers in an outpatient setting may reveal benefits and opportunities for improvement.

objectivesAssess goals of care conversations between the healthcare team and Veterans with chronic heart and lung diseases to better understand patient's perspectives on care goals.

methodsIn the intervention arm of a clinical trial, a nurse or social worker conducted telephone-based outpatient goals of care conversations using a semi-structured, seven-question communications guides. Inductive thematic qualitative analysis was applied to audio recordings of 27 conversations. Three independent coders iteratively developed emerging themes, which were further refined through team consensus.

resultsParticipants mean age was 66 years (SD 6), 93% male, and 70% self-identified non-Hispanic white. The mean length of conversation was 51 minutes (SD 14). Four themes emerged: (1) participants appreciated the discussions and found them meaningful; (2) participant readiness to engage varied and often evolved; (3) goals were highly individualized and ranged from health care to personal; and (4) participants confused medical and legal terminology.

conclusionIn goals of care conversations with Veterans with cardiopulmonary disease, goals evolved, revealing personalized insights that could shape their treatment plans. Variations in participant readiness and challenges in terminology emerged and progressed within single encounters.

Indexed as

CommunicationHeart DiseasesLung DiseasesPatient Care PlanningAgedChronic DiseaseFemaleGoalsHumansMaleMiddle AgedPatient Care TeamVeteranschronic illnessgoals of careheart failuremultidisciplinary teamsQualitativeveterans

Identifiers

PMID41759991
PMCPMC13140103

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.