Evidence map›Paper›PMID 41757655›Full record

ArticleBerichte zur Wissenschaftsgeschichte2026

Learning with Patient Campaigners About a German Drug Scandal*.

Jesse Olszynko-Gryn, Anja Suter, Edmund Bolger, Birgit Nemec

Abstract readHistorical Article
In one paragraph

Article in Berichte zur Wissenschaftsgeschichte, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jesse Olszynko-GrynMax-Planck-Institut für Wissenschaftsgeschichte, Boltzmannstraße 22, 14195, Berlin, Germany.
Anja SuterInstitut für Geschichte der Medizin und Ethik in der Medizin, Charité - Universitätsmedizin Berlin, Thielallee 71, 14195, Berlin, Germany.
Edmund BolgerIndependent Filmmaker,, Berlin, Germany.
Birgit NemecFakultätszentrum für transdisziplinäre historisch-kulturwissenschaftliche Studien, Universität Wien, Kolingasse 14-16, 1090, Wien, Austria.ORCID https://orcid.org/0000-0003-2359-5556

Funding

Arts and Humanities Research Council AH/T013281/1Deutsche Forschungsgemeinschaft NE 2419/1-1European Research Council BT 101115642
6 · The paper itself

Abstract

The West German drug Duogynon was internationally marketed as a "hormone pregnancy test" (HPT) between the 1950s and 1980s. In the late 1960s it came under suspicion for inducing miscarriage, spina bifida, and a spectrum of birth defects similar to those caused by the sedative thalidomide. In contrast to thalidomide, medical consensus did not form around the teratogenicity of Duogynon and many people who identify as Duogynon-affected continue to campaign for recognition. The informal use of Duogynon as an abortion pill adds a further layer of shame, secrecy, and silence. In this article, we reflect on the value of oral history and the ethics of inclusion within a larger research project that investigates the rise and fall of HPTs, globally. We ask what collaborating with patient campaigners in a more participatory mode than is typical of archival research can contribute to the historical understanding of the Duogynon affair and other drug scandals.

Indexed as

Abnormalities, Drug-InducedAbortion, InducedFemaleGermanyHistory, 20th CenturyHumansPregnancySpinal DysraphismdisabilityDuogynonethicshealth activisminclusionoral history

Identifiers

PMID41757655
PMCPMC13047414

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.