Evidence map›Paper›PMID 41749440›Full record

ArticleScandinavian journal of caring sciences2026

Exploring Patient Experiences of Symptom Support From Healthcare Professionals in Acute and Chronic Illness: A Qualitative Study.

Malene Missel, Mary Jarden, Nanna Witting, Helle Pappot, Mai Nanna Schønau, Maria Camilla Mathiasen, Camilla Corvinius, Pernille Orloff Donsel, Melissa Culligan, Giulia Locatelli and 2 more

Abstract read
In one paragraph

Article in Scandinavian journal of caring sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Malene MisselDepartment of Cardiothoracic Surgery, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0003-3267-8038
Mary JardenDepartment of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.ORCID 0000-0003-3040-8384
Nanna WittingDepartment of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.ORCID 0000-0002-0664-0709
Helle PappotDepartment of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.ORCID 0000-0002-3570-5372
Mai Nanna SchønauDepartment of Cardiothoracic Surgery, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0002-4814-5888
Maria Camilla MathiasenDepartment of Oncology, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0003-0967-0273
Camilla CorviniusDepartment of Cardiothoracic Surgery, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID 0009-0007-4958-5897
Pernille Orloff DonselDepartment of Cardiothoracic Surgery, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0003-4798-752X
Melissa CulliganThoracic Surgery Research, Department of Thoracic Medicine and Surgery, Temple University Hospital Philadelphia, Philadelphia, Pennsylvania, USA.
Giulia LocatelliDepartment of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy.ORCID 0000-0003-1841-8379
Karin PiilDepartment of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.ORCID 0000-0001-7972-4674
Linda Kahr AndersenDepartment of Neurology, Copenhagen Neuromuscular Center, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0002-4780-7739

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSymptoms are a central part of living with illness, and healthcare professionals play a crucial role in supporting patients in the managing of these. Symptom support is not only about alleviating physical discomfort but also about addressing the subjective and existential dimensions of illness. Understanding how patients experience such support is essential for strengthening communication, dignity, and person-centred care.

aimsThis study aims to explore the meaning of patients' experience of support from HCP in managing symptoms, and how this meaning shapes their understanding of symptoms and subsequent strategies.

methodsA qualitative design was applied. In-depth interviews were conducted with 10 patients diagnosed with acute or chronic illness and receiving care in hospital and outpatient settings. Data were analysed using a phenomenological hermeneutic approach inspired by Ricoeur.

findingsThree themes were identified. Caught in the gaps of continuity in care describes how patients experienced symptom support as fragmented and inconsistent, shaped both by organisational structures and the professionals they encountered. Dialogue, relationship and professional knowledge as a vulnerable space highlights how encounters with healthcare professionals were perceived as fragile moments, where recognition, time, and competence could either foster trust or leave patients feeling exposed. Between silence and support in the healthcare encounter reflects how organisational structures and clinical routines often failed to address patients' concerns, creating silent spaces where symptoms and existential needs were overlooked.

conclusionsPatient experiences reveal how symptom support is shaped by both relational vulnerability and systemic fragmentation. When symptoms are overlooked, patients feel abandoned and burdened with coordinating their own care. Strengthening relational continuity, clarifying roles across professions explicitly to patients, and prioritising dialogue and empathy in clinical encounters are crucial steps toward ensuring person-centred symptom management that promotes dignity and well-being.

Indexed as

Health PersonnelProfessional-Patient RelationsAcute DiseaseAdultAgedAged, 80 and overChronic DiseaseFemaleHumansMaleMiddle AgedPatient-Centered CareQualitative Researchacute and chronic illnesshealthcare professionalspatient‐centred carepatient involvementphenomenologyqualitative studyRicoeursymptom experiencessymptom science

Identifiers

PMID41749440
PMCPMC12946600

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.