ArticleActa anaesthesiologica Scandinavica2026
National Online Peer Support for People Recovering From Critical Illness and Their Families: A Study Protocol.
Article in Acta anaesthesiologica Scandinavica, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundPeople surviving critical illness often experience long-lasting impairments of varying severity known as post-intensive care syndrome. These challenges persist well beyond hospital discharge and affect not only patients but also their families. Peer support services, defined as structured interventions where former ICU patients use their lived experience to support each other through shared understanding, are well established in England and several other countries. In Denmark, however, only in-person peer support meetings are offered. Approximately 10% of those invited in Denmark attend these meetings, so low attendance, which may reflect practical barriers or limited knowledge about the concept.
objectiveTo co-create, develop, and evaluate a Danish online peer-support service that supports survivors of critical illness and their families in their recovery path.
methodsA participatory design study will be conducted within a Danish context, using a multi-method approach. Participatory design, grounded in the principles of action research, seeks to create meaningful change in practice through close collaboration between researchers and those directly affected; in this study, survivors of critical illness and their families. The study will be conducted in three iterative phases outlined in three work packages. First, user needs and preferences regarding the content, format, and structure of an online peer support service will be explored through semi-structured interviews with 10 ICU survivors and 10 family members. Second, insights from these interviews will inform a series of co-creation workshops involving 24 invited participants covering ICU survivors, families, and healthcare professionals to collaboratively design and refine the online peer support service. Third, we will evaluate the usability, acceptability, and user experiences of the co-created service.
conclusionBy evaluating a co-created online peer support service, this study will potentially contribute with a feasible service improving long-term recovery for survivors of critical illness and/or their families.
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