Evidence map›Paper›PMID 41743858›Full record

ArticleMDM policy & practice

Divergence in Perceptions of Shared Decision Making in Pediatric Neuromuscular Scoliosis.

Jody L Lin, Angela Zhu, Marla L Clayman, Kimberly A Kaphingst, Kaleb G Eppich, Greg Stoddard, Lindsay Andras, Unni G Narayanan, Heather T Keenan, Tamara D Simon and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in MDM policy & practice. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Jody L LinDivision of Hospital Medicine, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT, USA.ORCID https://orcid.org/0000-0002-9964-7984
Angela ZhuDivision of Hospital Medicine, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT, USA.ORCID https://orcid.org/0000-0002-7177-0198
Marla L ClaymanCenter for Health Optimization and Implementation Research (CHOIR), VA Bedford Healthcare System, Bedford, MA, USA.ORCID https://orcid.org/0000-0001-8491-3672
Kimberly A KaphingstDepartment of Communication and Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.ORCID https://orcid.org/0000-0003-2668-9080
Kaleb G EppichDivision of Epidemiology, Department of Internal Medicine, University of Utah, Salt Lake City, UT, USA.
Greg StoddardStudy Design and Biostatistics Center, University of Utah, Salt Lake City, UT, USA.
Lindsay AndrasJackie and Gene Autry Children's Orthopedic Center, Children's Hospital Los Angeles, Los Angeles, CA, USA.
Unni G NarayananOrthopaedic Surgery, Rehabilitation Sciences, Institute of Health Policy Management & Evaluation, University of Toronto, Hospital for Sick Children, Toronto, ON, Canada.
Heather T KeenanDivision of Critical Care Medicine, Department of Pediatrics, University of Utah, Salt Lake City, UT, USA.ORCID https://orcid.org/0000-0002-1985-7851
Tamara D SimonDivision of Hospital Medicine, Department of Pediatrics, University of Southern California Keck School of Medicine, Los Angeles, CA, USA.ORCID https://orcid.org/0000-0003-4734-7020
Steven M AschDepartment of Medicine, Stanford University, Palo Alto, CA, USA.ORCID https://orcid.org/0000-0001-5838-5335
Angela FagerlinDepartment of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.ORCID https://orcid.org/0000-0002-9192-2777

Funding

CTSA UM1 Program at University of UtahUM1TR004409 · NCATS · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI RACHEL HESS, Jennifer Juhl Majersik · 2023 to 2026
$21.9M
Developing an Innovative Decision Support Tool for Pediatric Neuromuscular ScoliosisK23AR079778 · NIAMS · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI Jody Lin · 2022 to 2026
$942k
NCATS NIH HHS UM1 TR004409NIAMS NIH HHS K23 AR079778
6 · The paper itself

Abstract

Highlights: Both observer- and self-rated measures overestimate and inadequately capture the quality of shared decision making for children with medical complexity.Better provider-driven elicitation of family preferences and values is needed.Assessment of decisional self-efficacy is often missed.

Indexed as

children with medical complexityqualitative researchshared decision-making

Identifiers

PMID41743858
PMCPMC12929890

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.