Evidence map›Paper›PMID 41735202›Full record

ArticlePsycho-oncology2026

Neurodiversity-Affirming Principles in Oncology Treatment: A Lived-Experience Case Study.

Rebecca Trevethick, Simon Baron-Cohen, Elizabeth Weir, Carrie Allison, Matthew C Fysh, David P Laplante, Malini Dey, Jessica E Opie

Abstract readCase Reports
In one paragraph

Article in Psycho-oncology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rebecca Trevethickno affiliation.
Simon Baron-CohenAutism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge, UK.ORCID https://orcid.org/0000-0001-9217-2544
Elizabeth WeirAutism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge, UK.ORCID https://orcid.org/0000-0001-5434-9193
Carrie AllisonAutism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge, UK.ORCID https://orcid.org/0000-0003-2272-2090
Matthew C FyshAutism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge, UK.ORCID https://orcid.org/0000-0002-3812-3749
David P LaplanteCentre for Child Development and Mental Health, Lady Davis Institute, Jewish General Hospital, Montreal, Quebec, Canada.ORCID https://orcid.org/0000-0002-9723-1141
Malini DeyAutism Research Centre, Department of Psychiatry, University of Cambridge, Cambridge, UK.ORCID https://orcid.org/0000-0003-2291-7955
Jessica E OpiePrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.ORCID https://orcid.org/0000-0002-0559-0842

Funding

Innovative Medicines Initiative 2 Joint Undertaking 777394Wellcome Trust 214322\Z\18\Z
6 · The paper itself

Abstract

Cancer care, with its complex and variable protocols, frequent appointments, and high-stress, may present additional challenges for neurodivergent patients, and suitable care accommodations are necessary. Yet, a dearth of literature and an associated understanding on neuro-inclusive cancer care exists. The current case study aims to: (1) explore and identify barriers and challenges to neurodivergent cancer care; and (2) generate neuro-inclusive oncology-specific recommendations to guide healthcare providers in offering neuro-affirming care. To do this, we present the first author's lived experience navigating stage IV breast cancer as a neurodivergent individual and psychologist, exploring barriers and challenges encountered. Her personal and professional experience uniquely positions her to offer insights into this intersection. Based on her experience, and complemented by published data, we generate recommendations for neuro-inclusive care. Challenges and barriers identified include limited oncology provider knowledge, awareness, and tolerance of neurodivergence, and insufficient suitable accommodations to difficulties with standard care practices. Recommendations encompass six domains: patient communication, physical environments, physical pain, administrative approaches, technology usage, and systemic revisions. Clinical, training, and research recommendations and implications are reported. Clinical implications include raising awareness around the lack of neurodivergent-affirming cancer care. We highlight the need for neuro-inclusive training for all staff interacting with neurodivergent patients. Such training should be embedded into graduate programs and professional development. We call for co-designed training (development and delivery) and research, and highlight the lack of current available research. We note the need for empirically driven universal guidelines for neuro-inclusive oncology care, which we hope will be informed by the present study.

Indexed as

Breast NeoplasmsFemaleGender-Nonconforming PersonsHumansattention‐deficit/hyperactivity disorderautism (autism spectrum disorders)cancermental healthneurodivergentoncology (general)

Identifiers

PMID41735202
PMCPMC12932256

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.