Evidence map›Paper›PMID 41735025›Full record

ReviewPediatric dermatology2026

Multidisciplinary Management of Epidermolysis Bullosa.

James A Feinstein, Caitlin Cacioppo, Liliane Diab, Catherine Doernbrack, Devin M Godber, Shelly Heinrichs, Shekema Kunz, Mark P Popenhagen, Carol Schober-Flores, Amanda I Stack and 1 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Pediatric dermatology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

James A FeinsteinDepartment of Pediatrics, University of Colorado Anschutz School of Medicine, Aurora, Colorado, USA.
Caitlin CacioppoSection of Nutrition, Epidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.
Liliane DiabDepartment of Pediatrics, University of Colorado Anschutz School of Medicine, Aurora, Colorado, USA.
Catherine DoernbrackDepartment of Pediatrics, University of Colorado Anschutz School of Medicine, Aurora, Colorado, USA.ORCID https://orcid.org/0009-0006-3646-1943
Devin M GodberDepartment of Occupational Therapy, Epidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.
Shelly HeinrichsDepartment of Social Work, Epidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.
Shekema KunzDepartment of Physical Therapy, Epidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.
Mark P PopenhagenDepartment of Anesthesiology, University of Colorado Anschutz School of Medicine, Aurora, Colorado, USA.ORCID https://orcid.org/0000-0002-3467-6848
Carol Schober-FloresEpidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.
Amanda I StackEpidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.
Anna L BrucknerEpidermolysis Bullosa Center, Children's Hospital Colorado, Aurora, Colorado, USA.ORCID https://orcid.org/0000-0002-2035-4127

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Epidermolysis bullosa (EB) impacts the skin and other organ systems, and the management of affected patients is complex and requires coordinated care. Severe EB simplex, junctional EB, and recessive dystrophic EB are effectively multisystem disorders affecting the epithelia and other organ systems with a range of complications. This article describes our center's approach to providing a comprehensive, holistic, and patient-centered approach to care of patients with EB in our multidisciplinary EB clinic. Teams from dermatology, pediatrics, occupational and physical therapy, nutrition, social work, and pain psychology work collaboratively to manage the cutaneous, extracutaneous, and psychosocial needs of these patients.

Indexed as

Epidermolysis BullosaPatient Care TeamChildHumansPatient-Centered Careepidermolysis bullosamedical homemultidisciplinary carenutrition

Identifiers

PMID41735025
PMCPMC13544493

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.