ArticleWellcome open research2025
Disability Inclusive Youth (DIY) Research: an innovative and co-creative study to improve inclusion of children and youth with disabilities in health research in East Africa: a mixed-method study protocol.
Article in Wellcome open research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Young people with disabilities are rarely included in research, yet 75% of the East African population is under 30 years old and an estimated 15% have a disability. Without including young persons with disabilities in designing and implementing health research, we will not achieve global development goals. The aim of Disability Inclusive Youth (DIY) study is to explore barriers and facilitators to inclusion of children and youth with disabilities in health research, co-create solutions to make health research in East Africa disability inclusive, and create a disability knowledge and research centre to inform and support inclusive health research in the region. The DIY study will develop a novel participatory approach to enhance the inclusion of children and youth with disabilities in health research in East Africa. We will build capacity of 12 youth with disabilities from Uganda, Kenya, and Rwanda through a research training programme. The youth researchers will conduct interviews with 75 leading health researchers, 30 key health stakeholders, and 60 children and youth with disabilities and their caregivers. Together with the youth we will design recommendations to make health research more inclusive of children and youth with disabilities through participatory workshops. At the end of the study we will have established a regional knowledge and research centre where children and youth with disabilities contribute to and health researchers consult about disability inclusive health research. Data collection methods include survey questionnaires, in-depth interviews, case studies, video and photovoice. Data will be analysed qualitatively using a thematic approach in NVIVO and quantitatively using STATA. This is a 5 year study funded by Wellcome, through the London School of Hygiene and Tropical Medicine, in partnership with the MRC/UVRI & LSHTM Uganda Research Unit, the University of Nairobi and the University of Rwanda / Lifetime Research Group.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.