ArticleEuropean journal of pediatrics2026
Nurses' perspectives on implementing pediatric palliative care: a qualitative participatory study on the emerging role of the advanced practice nurse.
Article in European journal of pediatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
The implementation of Pediatric Palliative Care (PPC) in hospital settings places considerable demands on nursing staff, particularly during early phases of change. This study explored nurses' experiences, attitudes, and perceived support needs during the early implementation of a PPC concept at a tertiary pediatric hospital in Austria. A qualitative participatory design was applied. Four moderated focus group discussions were conducted with 18 registered nurses working on two pediatric wards where PPC beds were newly introduced. Data were audio-recorded, transcribed verbatim, and analyzed using Braun and Clarke's thematic analysis. Four themes were identified: experiences with PPC, PPC as a new model of care, challenges of implementation, and expectations toward PPC. Nurses reported emotional burden, conceptual uncertainty, and limited opportunities for structured training and reflection. Although many participants had prior experience caring for children with life-limiting conditions, these experiences were largely informal and lacked a shared framework. Nurses articulated a strong need for accessible support structures and identified the absence of advanced nursing expertise as a key gap during early PPC implementation.
conclusionNurses' experiences underscore the importance of structured support, conceptual clarity, and emotional resources during early PPC implementation. The articulated need for advanced nursing expertise emerged inductively as a support requirement rather than an evaluation of an existing role and may inform future implementation and role development strategies. WHAT IS KNOWN: • Pediatric Palliative Care is frequently misunderstood as synonymous with end-of-life care. • Implementing Pediatric Palliative Care in hospital settings requires complex organizational change. WHAT IS NEW: • This qualitative study provides in-depth insight into nurses' experiences during the early implementation of Pediatric Palliative Care in a tertiary pediatric hospital. • Although nurses had prior informal experience caring for children with life-limiting conditions, PPC was perceived as both familiar and novel due to the absence of a shared conceptual framework, leading to emotional burden, conceptual uncertainty, and unmet needs for structured support, including accessible advanced nursing expertise.
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