Evidence map›Paper›PMID 41718963›Full record

ArticleJournal of community health2026

Development of an Advance Care Planning Pilot Module for New York City Community Members.

Sabina Kubayeva, Tyler M Johnson, Nathalie Vieux-Gresham, Alison Snow, Lina Jandorf

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of community health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Sabina KubayevaCollege of Medicine, State University of New York Downstate Health Sciences University, 450 Clarkson Avenue, Brooklyn, NY, 11203, USA. Sabina.Kubayeva@downstate.edu.ORCID 0009-0005-4140-4321
Tyler M JohnsonUniversity of Virginia School of Medicine, Charlottesville, VA, USA.ORCID 0000-0003-2235-9391
Nathalie Vieux-GreshamHackensack Meridian School of Medicine, Clifton, NJ, USA.ORCID 0009-0007-1738-6420
Alison SnowIcahn School of Medicine at Mount Sinai, New York, NY, USA.ORCID 0000-0003-3983-4857
Lina JandorfDepartment of Population Health Sciences and Policy at the Icahn School of Medicine at Mount Sinai, New York, NY, USA.ORCID 0000-0001-7239-1053

Funding

THE TISCH CANCER INSTITUTE - CANCER CENTER SUPPORT GRANTP30CA196521 · NCI · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI Ramon E Parsons · 2015 to 2026
$35.4M
National Medical Fellowships: Health Excellence Leadership Program National Medical Fellowships: Health Excellence Leadership ProgramNCI NIH HHS P30 CA196521Robert A. Winn Excellence in Clinical Trials: Clinical Investigator Pathway Program Robert A. Winn Excellence in Clinical Trials: Clinical Investigator Pathway ProgramTisch Cancer Institute Cancer Support Grant P30CA196521
6 · The paper itself

Abstract

Advance care planning (ACP) facilitates discussions about future healthcare decisions to ensure alignment with individuals' values, goals, and medical preferences. Despite its benefits, ACP engagement and completion of advance directives (AD) remain limited due to low awareness, misconceptions, and structural barriers. The Tisch Cancer Institute Community Outreach and Engagement Department at Mount Sinai in New York City (NYC) identified this knowledge gap as a key community need. In response, a community-based educational module was created to enhance ACP and AD knowledge. Curriculum development was informed by a literature review and collaboration with health educators, social workers, and palliative care specialists. The intervention included a 30-minute slideshow, a two-page glossary and resource handout, and a healthcare proxy AD form. Workshop impact, acceptability, and feedback were assessed using a validated survey with eight Likert-scale items and two open-ended questions. Descriptive statistics summarized quantitative responses, and thematic analysis was applied to open-ended feedback. Community adult members across NYC participated in eleven workshops held at diverse community sites from June 2024 to June 2025, engaging 141 individuals with a feedback survey response rate of approximately 40% (N = 56). Findings demonstrated acceptability and feasibility. Participants reported increased understanding of ACP concepts and improved confidence in completing ADs. Qualitative comments emphasized clarity, relevance, and practicality of materials. Our community-based educational workshops effectively enhanced ACP knowledge and empowered participants in healthcare decision-making. Future directions include expanding workshop reach, translating materials, and conducting longitudinal follow-up to evaluate sustained engagement and impact on AD completion rates over time.

Indexed as

Advance Care PlanningAdultAgedCurriculumFemaleHealth Knowledge, Attitudes, PracticeHumansMaleMiddle AgedNew York CityPilot ProjectsAdvance care planningAdvanced directivesCommunity-based educationOlder adults

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.