Evidence map›Paper›PMID 41710504›Full record

ArticleHealth affairs scholar2026

Amplifying community perspectives in Medicaid policymaking: findings from North Carolina.

Sara Debab, Samantha Repka, Katie Huber, Alida Austin, Rushina Cholera, William Bleser, Yolande Pokam Tchuisseu, Ariana Khayamian, Anna Seaman, Andrea Thoumi and 2 more

Abstract read
In one paragraph

Article in Health affairs scholar, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Sara DebabDuke-Margolis Institute for Health Policy, Washington, DC 20004, USA.ORCID https://orcid.org/0009-0009-3690-8487
Samantha RepkaDuke-Margolis Institute for Health Policy, Durham, NC 27708, USA.ORCID https://orcid.org/0009-0007-3845-3821
Katie HuberDuke-Margolis Institute for Health Policy, Durham, NC 27708, USA.ORCID https://orcid.org/0000-0003-2519-8714
Alida AustinDuke-Margolis Institute for Health Policy, Washington, DC 20004, USA.ORCID https://orcid.org/0009-0006-8881-3453
Rushina CholeraDuke-Margolis Institute for Health Policy, Durham, NC 27708, USA.
William BleserDuke-Margolis Institute for Health Policy, Washington, DC 20004, USA.ORCID https://orcid.org/0000-0002-4640-8680
Yolande Pokam TchuisseuDuke-Margolis Institute for Health Policy, Washington, DC 20004, USA.
Ariana KhayamianDuke-Margolis Institute for Health Policy, Durham, NC 27708, USA.ORCID https://orcid.org/0009-0007-4320-5160
Anna SeamanDuke-Margolis Institute for Health Policy, Durham, NC 27708, USA.ORCID https://orcid.org/0009-0006-0411-7419
Andrea ThoumiDuke University, Durham, NC 27708, USA.ORCID https://orcid.org/0000-0003-2264-6390
Robert SaundersDuke-Margolis Institute for Health Policy, Washington, DC 20004, USA.ORCID https://orcid.org/0000-0002-9349-872X
Rebecca WhitakerDuke-Margolis Institute for Health Policy, Durham, NC 27708, USA.ORCID https://orcid.org/0000-0003-4500-3451

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: In the midst of sweeping federal and state policy changes that will significantly impact Medicaid, effectively integrating community feedback into Medicaid policymaking will require identifying what Medicaid beneficiaries want and need to be healthy. We aimed to identify North Carolina community leaders' and community members' wants, needs, and experiences with Medicaid. Methods: This qualitative study collected data using semi-structured interviews with 4 leaders of community-based organizations (CBOs), and 6 focus groups with 37 community members held across North Carolina between April and August 2024. Results: A rapid qualitative analysis yielded 6 themes related to barriers and facilitators to overall health and well-being: (1) Challenges Applying for and Accessing Medicaid Services, (2) Addressing Health-Related Social Needs, (3) Accessing High-Quality Providers & Services, (4) Experiencing Stigma, Bias and Discrimination in Clinical Settings, (5) Promoting Coordination, Co-Location to Help with System Navigation, and (6) Enhancing Medicaid Engagement with Communities. Conclusion: CBO leaders and community members communicated actionable insights that amplify important perspectives often not incorporated in Medicaid policymaking. As Medicaid agencies contend with implementing broad structural changes to their benefits and programs, it will be critical to tailor future reforms to address community feedback and maintain the health and well-being of beneficiaries.

Indexed as

access to carehealth disparitiesmanaged careMedicaid

Identifiers

PMID41710504
PMCPMC12911923

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.