Evidence map›Paper›PMID 41709597›Full record

ArticleJournal of evaluation in clinical practice2026

Principles and Strategies for Interest-Holder Engagement in Health Guideline Development.

Olivia Magwood, Caitlin Shyng, Lyubov Lytvtyn, Joanne Khabsa, Alex Young-Soo Lee, Jennifer Petkovic, Vivian Welch, Kevin Pottie, Peter Tugwell

Abstract read
In one paragraph

Article in Journal of evaluation in clinical practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Olivia MagwoodInterdisciplinary School of Health Sciences, Faculty of Health Science, University of Ottawa & Bruyère Health Research Institute, Ottawa, Ontario, Canada.ORCID 0000-0003-0262-5621
Caitlin ShyngFaculty of Science, University of Ottawa, Ottawa, Ontario, Canada.
Lyubov LytvtynDepartment of Health Research, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada.ORCID 0000-0003-4425-2982
Joanne KhabsaClinical Research Institute, American University of Beirut, Beirut, Lebanon.ORCID 0000-0002-4336-3501
Alex Young-Soo LeeFaculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Jennifer PetkovicFaculty of Medicine, University of Ottawa & Bruyère Health Research Institute, Ottawa, Ontario, Canada.ORCID 0000-0002-5824-584X
Vivian WelchSchool of Epidemiology and Public Health, Faculty of Medicine, University of Ottawa & Bruyère Health Research Institute, Ottawa, Ontario, Canada.ORCID 0000-0002-5238-7097
Kevin PottieFaculty of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada & Bruyère Health Research Institute, Ottawa, Ontario, Canada.ORCID 0000-0002-1874-8346
Peter TugwellFaculty of Medicine & School of Epidemiology and Public Health, University of Ottawa &, Clinical Epidemiology Program, Ottawa Hospital Research Institute, & Bruyère Health Research Institute, Ottawa, Ontario, Canada.ORCID 0000-0001-5062-0556

Funding

Canadian Institutes for Health ResearchOntario Graduate Scholarship
6 · The paper itself

Abstract

rationaleGuidelines are statements or recommendations that help interest-holders make decisions about clinical care or health policy. Engaging a wide range of interest-holders, such as patients, providers, policymakers and members of the public in the guideline development process can help ensure that guidelines are fit-for-purpose. The MuSE Consortium is developing guidance for the engagement of interest-holders throughout the guideline development process in the form of an extension of the Guidelines International Network (GIN)-McMaster Guideline Development Checklist (GDC). AIMS AND

objectivesThe objective of this study is to identify principles and strategies to promote interest-holder engagement across the guideline development enterprise.

methodsWe conducted interviews with 43 individuals from 10 different interest-holder groups and 15 different countries. We used a framework analysis to thematically analyze findings and identify principles and strategies relevant for engaged guideline development.

resultsGuideline development initiatives may better engage interest-holders by shifting from vertical to horizontal power structures, emphasizing collaboration and shared decision-making. We identified a need for epistemic justice, promoting fairness and equality in knowledge production and validation, particularly for patients and members of the public. Representation is a crucial key issue, necessitating diverse perspectives in guideline development groups. Strategies include involving interest-holders early and meaningfully in the guideline development process through governance, setting clear expectations and timelines, and providing fair compensation. Dissemination activities should extend beyond academic publications, empowering all interest-holders to contribute to activities such as presentations, educational sessions, or social media campaigns. While engagement is desirable, limitations may arise in emergency contexts or resource-constrained settings.

conclusionsGuideline developers may need to make pragmatic decisions as to who they engage in guideline development and how. Capacity strengthening in low- and middle-income countries may help address current disparities in engagement in guideline development. Future research should explore issues around representativeness of interest-holders.

Indexed as

Community ParticipationPractice Guidelines as TopicCooperative BehaviorDecision Making, SharedHealth PolicyHumansInterviews as Topicclinical practice guidelinesguideline developmentinterest‐holderspatient and public involvementstakeholder engagement

Identifiers

PMID41709597
PMCPMC12917349

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.