Evidence map›Paper›PMID 41706627›Full record

ArticleJournal of Parkinson's disease2026

Development and acceptability of a deep brain stimulation surgery decision aid for Parkinson's disease.

Michelle E Fullard, Erika Shelton, Ashley Dafoe, Drew S Kern, Megan A Morris, Dan D Matlock

Abstract read
In one paragraph

Article in Journal of Parkinson's disease, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Michelle E FullardDepartment of Neurology, University of Colorado, Aurora, CO, USA.ORCID 0000-0002-8749-2487
Erika SheltonDepartment of Neurology, University of Colorado, Aurora, CO, USA.
Ashley DafoeAdult & Child Center for Outcomes Research and Delivery Science, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Drew S KernDepartment of Neurology, University of Colorado, Aurora, CO, USA.
Megan A MorrisDepartment of Rehabilitation Medicine, NYU Grossman School of Medicine, New York, NY, USA.
Dan D MatlockDepartment of Medicine, University of Colorado, Aurora, CO, USA.

Funding

The Colorado Building Interdisciplinary Research Careers in Women's Health ProgramK12AR084226 · NIAMS · UNIVERSITY OF COLORADO DENVER · PI JUDITH G. REGENSTEINER, Nanette F. Santoro · 2023 to 2026
$2.5M
Improving Shared Decision-Making for Older Adults with Cognitive Impairment: Parkinson's Disease as a ModelK76AG083349 · NIA · UNIVERSITY OF COLORADO DENVER · PI Michelle Erin Fullard · 2024 to 2026
$728k
NIAMS NIH HHS K12 AR084226NIA NIH HHS K76 AG083349
6 · The paper itself

Abstract

BackgroundThe decision to undergo deep brain stimulation (DBS) surgery for patients with Parkinson's disease (PD) is often challenging and complex. Decisional outcomes may be improved by using decisional support tools that foster shared decision making.ObjectiveThe objective of this study was to develop a decision aid for PD patients considering DBS surgery and evaluate its acceptability.MethodsThe decision aid was developed using an evidence-based and systematic approach. The steps in development included a needs assessment, literature review, development of a decision aid prototype, and testing of the prototype with surveys for acceptability in a clinic setting.ResultsA total of 136 participants with PD participated in this study. The needs assessment included 57 participants who completed the decisional conflict scale with a mean score of 35.3, indicating high decisional conflict. After development, initial testing of the decision aid was completed by 22 participants (16 on paper version and 6 on interactive website version). Subsequently, 46 PD participants evaluated the decision aid for acceptability. Eighty seven percent of participants agreed or strongly agreed that they were satisfied with the quality of the decision aid. Most participants found the language, amount of information, length, balance, and risk and benefits section acceptable.ConclusionWe determined that PD patients undergoing DBS evaluation experience high decisional conflict. We subsequently created a DBS decision aid to increase knowledge, manage expectations, clarify values, and facilitate shared decision making. The decision aid was acceptable to PD patients with and without DBS.

Indexed as

Decision Making, SharedDecision Support TechniquesDeep Brain StimulationParkinson DiseasePatient Acceptance of Health CareAgedFemaleHumansMaleMiddle Ageddeep brain stimulation surgeryParkinson's diseaseshared decision makingtool development

Identifiers

PMID41706627
PMCPMC13160250

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.