ArticleEndocrine2026
The psychological impact of adult-onset craniopharyngioma: A follow-up survey.
Article in Endocrine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
- Quality of life, morbidity, mortality, and long-term prognosis after craniopharyngioma.Frontiers in endocrinology · 2026Review
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAdult-onset craniopharyngioma (AoC) is a rare benign tumour of the sellar/parasellar region associated with significant physical morbidity and a poorer quality of life. Limited medical studies have documented the psychological impact of AoC, but psychological studies may be better placed to investigate these effects. This study used an exploratory sequential mixed-methods design to develop and administer a new patient-informed survey to quantitatively assess the psychosocial consequences of AoC.
methodsA 30-item questionnaire was developed based on previous qualitative interviews with AoC patients and clinicians. Items covered psychological and physical impacts, including mood, social functioning, and emotion regulation. Participants (N = 25) were recruited online via a UK-based charity and completed the survey through Qualtrics. Percentage endorsements were calculated for each item, and regression analyses examined associations with individual history.
resultsThere was a clear psychosocial impact of AoC: 88% reported low mood, 68% felt they no longer recognized themselves, and 56% missed social events due to anxiety. Physical symptoms were also prominent, but importantly these were associated with significant psychosocial implications. Finally, growth hormone replacement therapy was significantly associated with reduced physical impact.
conclusionFindings demonstrate a significant psychosocial impact of AoC, highlighting the importance of integrated mental health care in its management and the need for further psychosocial research to improve quality of life for patients.
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