ArticleCureus2026
A Digital Patient Engagement and Monitoring System to Improve Quality, Safety, and Continuity of Care for Pediatric Sickle Cell Anemia: A Cross-Sectional Study of Caregiver Perceptions.
Article in Cureus, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction The management of chronic conditions like sickle cell anemia (SCA) requires high levels of patient and caregiver engagement to ensure adherence to treatment and prevent complications. Digital health interventions offer a promising avenue to support this engagement. This study evaluates the awareness, perceived usefulness, and readiness of caregivers to adopt a digital patient engagement and monitoring system for pediatric SCA management. Methods A cross-sectional survey was conducted using a structured Arabic-language questionnaire administered to 165 primary caregivers of children with SCA. The instrument included closed-ended Likert-scale items on current care challenges and digital readiness, alongside open-ended questions for qualitative insights. Quantitative data were analyzed descriptively with 95% confidence intervals, and qualitative responses underwent thematic analysis. Results Participants were predominantly parents (95.7%) and well educated (84.2% secondary or university graduates). Although 74.5% reported that clinic information was sufficient, adherence challenges remained: 44.2% sometimes and 11.5% frequently forgot appointments or medications, while 41.2% reported at least one missed event within six months. Perceptions toward digital tools were highly favourable: 86.1% (95% CI 80.2-90.5) endorsed their usefulness, 92.1% (95% CI 87.0-95.4) expressed readiness to use them, and 89.7% (95% CI 84.6-93.8) trusted digital platforms to manage health data. Nearly all respondents (97%) welcomed mobile notifications. Thematic analysis (n = 105 comments) identified four dominant needs: automated reminders (31%), emergency guidance (28%), improved communication (22%), and access to laboratory results (24%). Conclusion Caregivers of children with SCA demonstrate high readiness and a strong positive perception toward a digital engagement system. Such a system is well-positioned to address critical gaps in adherence and communication, thereby potentially improving the quality, safety, and continuity of care. The alignment between desired features and the system's design suggests high potential for successful implementation and impact.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.