Evidence map›Paper›PMID 41694672›Full record

ArticleParkinson's disease2026

Experiences of Australians Living With Parkinson's Disease.

Alycia Messing, Warren Bartik, Megan J Hobbs, Deborah Apthorp

Abstract read
In one paragraph

Article in Parkinson's disease, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Alycia MessingSchool of Psychology, University of New England, Armidale, Australia, une.edu.ORCID https://orcid.org/0000-0003-1282-1781
Warren BartikSchool of Psychology, University of New England, Armidale, Australia, une.edu.ORCID https://orcid.org/0000-0001-8344-3306
Megan J HobbsSchool of Rural Medicine, University of New England, Armidale, Australia, une.edu.ORCID https://orcid.org/0000-0003-0131-0089
Deborah ApthorpSchool of Psychology, University of New England, Armidale, Australia, une.edu.ORCID https://orcid.org/0000-0001-5785-024X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This study explores the healthcare experiences of Australians with Parkinson's disease, focusing on healthcare access, symptom management and support networks. Despite the body of research on the experiences of PwPD, there is limited understanding of the specific challenges faced by Australians in accessing and navigating healthcare services. A national survey was conducted, and free-text responses to an optional open-ended question were analysed using thematic analysis to identify key themes in healthcare experiences and barriers. Seven themes were identified: Navigating Healthcare, Diagnostic Experiences, Symptom Experience and Management, Optimism and Resilience, Knowledge and Understanding of Parkinson's Disease, Necessitated Self-Advocacy, and Community-Driven Support. Participants reported difficulties in obtaining timely diagnoses, navigating healthcare services and accessing specialised care. Information gaps and inadequate patient-provider communication were also noted. Peer support networks were highlighted as crucial for coping and resilience, with a notable shift away from traditional familial support structures. Findings underscore systemic challenges in healthcare access and communication for Australian PwPD and suggest that enhancing peer support networks and improving care pathways could strengthen disease management and support.

Indexed as

barriershealthcare accesspatient perspectivesthematic analysisunmet need

Identifiers

PMID41694672
PMCPMC12903024

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.