Evidence map›Paper›PMID 41693454›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2026

Enhancing Perinatal Care for Women With Intellectual Disabilities: Clinician Insights on Involving Family Caregivers.

Lauren D Smith, Anne Valentine, Tiffany A Moore Simas, Susan L Parish, Robyn Powell, Luanjiao Hu, Monika Mitra

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Lauren D SmithLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, Massachusetts, USA.ORCID https://orcid.org/0000-0001-6871-7436
Anne ValentineLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, Massachusetts, USA.ORCID https://orcid.org/0009-0001-0802-546X
Tiffany A Moore SimasDepartment of Obstetrics and Gynecology, University of Massachusetts Medical School, UMass Memorial Medical Center, Worcester, Massachusetts, USA.ORCID https://orcid.org/0000-0002-8356-6418
Susan L ParishMercy University, Dobbs Ferry, New York, USA.ORCID https://orcid.org/0000-0001-9045-1750
Robyn PowellLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, Massachusetts, USA.ORCID https://orcid.org/0000-0001-7898-2268
Luanjiao HuLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, Massachusetts, USA.ORCID https://orcid.org/0000-0002-5655-1851
Monika MitraLurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, Massachusetts, USA.ORCID https://orcid.org/0000-0002-4089-3240

Funding

Pregnancy experiences of women with IDD: Family caregiver perspectivesR01HD082105 · NICHD · UNIV OF MASSACHUSETTS MED SCH WORCESTER · PI MITRA, MONIKA, PARISH, SUSAN L. · 2015 to 2019
$2.8M
ACL HHS 90DPHF0011ACL HHS 90DPHF0013Eunice Kennedy Shriver National Institute of Child Health and Human Development R01HD082105NICHD NIH HHS R01 HD082105
6 · The paper itself

Abstract

backgroundWomen with intellectual disabilities experience disparities in perinatal outcomes and unmet needs in perinatal care. Many women with intellectual disabilities receive support from family caregivers, including accompaniment to healthcare visits. This qualitative study explores the experiences of obstetric care clinicians navigating perinatal care with family caregivers of women with intellectual disabilities.

methodsTranscripts from interviews (n = 9) and a focus group (n = 8) with 17 obstetric care clinicians were analyzed using a thematic analysis approach.

resultsFour major themes emerged: (1) determining intellectual disability and guardianship status; (2) decision-making; (3) navigating ethical, legal, relational, and clinical challenges; (4) caregivers as an integral part of perinatal care.

conclusionsFamily caregiver involvement in perinatal care of women with intellectual disabilities has benefits but can also present challenges for obstetric care clinicians. Clinicians need guidance on how to appropriately manage perinatal care of women with intellectual disabilities.

Indexed as

CaregiversIntellectual DisabilityPerinatal CareAdultAttitude of Health PersonnelFemaleHumansPregnancyQualitative Research

Identifiers

PMID41693454
PMCPMC12907783

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.