Evidence map›Paper›PMID 41693144›Full record

ArticleJournal of genetic counseling2026

Ableism is a value: The limits of the reciprocal-engagement model in prenatal care.

Amy R Reed

Abstract read
In one paragraph

Article in Journal of genetic counseling, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Amy R ReedDepartment of Writing Arts, Rowan University, Glassboro, New Jersey, USA.ORCID 0009-0002-1749-269X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Prenatal genetic counselors hold obligations to patients and to the wider community, including disabled people. The profession's commitment to disabled people is best encapsulated by NSGC's 2024 disability position statement, which "denounce[s] ableism." However, the major model of practice, the reciprocal-engagement model (REM), is not well-equipped to dislodge ableism in prenatal care and reproductive decision-making because it treats ableism as an information deficit and prioritizes patient values and self-esteem. Research shows that education alone is often not enough to dislodge ableism because ableism is itself a value system that is deeply embedded in beliefs, practices, and habits. Yet, REM offers few clear mechanisms for deliberating values or the meaning of disability with patients. Rather, patient values are privileged, even when they might conflict with the genetic counseling profession's values. In effect, the REM may lead counselors to tacitly endorse ableism in the pursuit of providing patient support. This article argues that prenatal genetic counselors might better thread the needle to both support patients and uphold their professional commitments to disabled people through developing a "rhetorical mode" of counseling in addition to the education and counseling modes. Drawing from the ancient discipline of rhetoric, such a mode could both help prenatal genetic counselors articulate an anti-ableist professional position and invite patients to engage in intentional deliberation about ableism and disability.

Indexed as

Genetic CounselingPrenatal CareDisability DiscriminationFemaleHumansPregnancyableismcommunicationdisabilityreciprocal engagement model

Identifiers

PMID41693144
PMCPMC12907522

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.