Evidence map›Paper›PMID 41691350›Full record

SynthesisArchives of public health = Archives belges de sante publique2026

Engagement strategies for people living with leprosy: a scoping review of studies published from 1992 to 2024.

Letícia Guedes Morais Gonzaga de Souza, João Lucas Braga Perin, Mariana Moreira Drumond, Carina Carvalho Silvestre, Sabrina Cerqueira-Santos, Genival Araujo Dos Santos Júnior

Abstract readSystematic Review
In one paragraph

Synthesis in Archives of public health = Archives belges de sante publique, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Letícia Guedes Morais Gonzaga de SouzaResearch Group On Implementation and Integration of Clinical Pharmacy Services in Brazilian Health System, Federal University of Espírito Santo, Alegre, Espírito Santo, Brazil.
João Lucas Braga PerinResearch Group On Implementation and Integration of Clinical Pharmacy Services in Brazilian Health System, Federal University of Espírito Santo, Alegre, Espírito Santo, Brazil.
Mariana Moreira DrumondInterdisciplinary Study Group in Pharmaceutical Care, Federal University of Juiz de Fora, Governador Valadares Campus, Minas Gerais, Brazil.
Carina Carvalho SilvestreInterdisciplinary Study Group in Pharmaceutical Care, Federal University of Juiz de Fora, Governador Valadares Campus, Minas Gerais, Brazil.
Sabrina Cerqueira-SantosInterdisciplinary Study Group in Pharmaceutical Care, Federal University of Juiz de Fora, Governador Valadares Campus, Minas Gerais, Brazil. sabrina.cerqueira@ufjf.br.
Genival Araujo Dos Santos JúniorResearch Group On Implementation and Integration of Clinical Pharmacy Services in Brazilian Health System, Federal University of Espírito Santo, Alegre, Espírito Santo, Brazil.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLeprosy is an infectious disease that can cause permanent deformities if untreated. Stigmatization contributes to treatment abandonment and social exclusion. Engaging patients and families may improve health outcomes. This scoping review mapped studies on engagement strategies for people with leprosy.

methodsDatabase searches were conducted up to February 2025, including original studies that addressed engagement strategies for individuals with leprosy, as well as their families and communities. Terms related to “leprosy” and “health behavior” guided the search in EMBASE, Scopus, BVS/Lilacs, Medline/PubMed, and Web of Science. Independent selection and data extraction were conducted and strategies synthesized using the adapted 6W4H tool. They were classified into five engagement levels: Inform about health, Inform about engagement, Empower, Partner and Integrate.

resultsEighteen studies published between 1992 and 2024 were included. The identified strategies consisted prevention of disability (POD) interventions (n = 3; 16.67%), mobile applications for health education and leprosy case detection (n = 2; 11.11%), self-help groups (SHG) (n = 2; 11.11%), self-care group (SCG)(n = 1; 5.76%), community project to improve attitudes towards leprosy (n = 1; 5.76%), lesson plans for health education on leprosy (n = 1; 5.76%), community project to reduce stigma related to leprosy (n = 1; 5.76%), face-to-face meetings between people with leprosy and the general public (n = 1; 5.76%), text messages for monitoring pharmacological treatment of leprosy patients (n = 1; 5.76%), self-care education program (n = 1; 5.76%), educational podcast (n = 1; 5.76%), training for healthcare professionals and community health agents (n = 2; 11.11%), and education on self-examination and fictional television works (n = 1; 5.76%). The main objectives were health education (n = 5; 27.78%) and deformity prevention (n = 6; 33.33%). Most strategies were led by healthcare professionals (n = 10; 55.56%) and targeted individuals affected by leprosy (n = 12; 66.67%). The most common level of engagement was Empower (n = 8; 44.44%) and none were identified as reaching Partner or Integrate levels, highlighting an important gap in strategies that promote deeper forms of engagement.

conclusionsThe review highlights several engagement strategies, especially those enabling the levels Inform about Health and Empower. However, literature lacks strategies promoting deeper engagement, such as Partner and Integrate, highlighting the need for new approaches.

Indexed as

Health BehaviorLeprosyPatient Participation

Identifiers

PMID41691350
PMCPMC13011485

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.