Evidence map›Paper›PMID 41688108›Full record

ArticleBMJ open2026

Setting research priorities for palliative and end-of-life care: a James Lind Alliance Priority Setting Partnership Refresh.

Briony F Hudson, Phillippa Ashcroft, Jennifer Bedford, Jessica Bush, Ben Bowers, Annabel Dawson, Jamilla Hussain, Sarah Holmes, Rashmi Kumar, Ollie Minton and 9 more

Abstract read
In one paragraph

Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Briony F HudsonMarie Curie, London, UK b.hudson@ucl.ac.uk.ORCID http://orcid.org/0000-0002-2907-1764
Phillippa AshcroftMarie Curie, London, UK.
Jennifer BedfordMotor Neurone Disease Association, Northampton, UK.
Jessica BushMarie Curie, London, UK.
Ben BowersDepartment of Public Health and Primary Care, University of Cambridge, Cambridge, UK.ORCID http://orcid.org/0000-0001-6772-2620
Annabel DawsonLived Experience Group, London, UK.
Jamilla HussainBradford Teaching Hospitals NHS Foundation Trust, Bradford, UK.
Sarah HolmesMarie Curie, London, UK.
Rashmi KumarLived Experience Group, London, UK.
Ollie MintonMarie Curie Research Voices Group, London, UK.ORCID http://orcid.org/0000-0002-4258-8995
Angela McCullaghMarie Curie Research Voices Group, London, UK.
Louisa NicollLived Experience Group, London, UK.
Alison PennyNational Children's Bureau, Childhood Bereavement Network, London, UK.ORCID http://orcid.org/0000-0003-2818-4414
Mary RabbitteAll Ireland Institute of Hospice and Palliative Care, Dublin, Ireland.
Alexandra ReeceLived Experience Group, London, UK.ORCID http://orcid.org/0009-0008-9768-9778
Diana RobinsonMarie Curie Research Voices Group, London, UK.
Charlotte Simpson-GreeneMarie Curie, London, UK.
Melanie TaylorHospice UK, London, UK.ORCID http://orcid.org/0009-0007-8626-3424
Sabine L BestMarie Curie, London, UK.ORCID http://orcid.org/0000-0002-9423-8110

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPalliative care supports the physical, emotional, social and spiritual needs of people with serious life-limiting illness. Future research must align with the priorities of people approaching the end of their lives, and those close to them.

aimsTo undertake a refresh of the James Lind Alliance Palliative and End of Life Care Priority Setting Partnership, to identify and prioritise areas for future research.

designThe James Lind Alliance process was applied, between May 2023 and February 2025. An initial online survey collected areas for future research from participants. These were synthesised into a long list of questions and shortlisted through a second online survey. Final ranking of priorities was achieved using an adapted Nominal Group Technique within a prioritisation workshop.

participantsPeople living with serious life-limiting illnesses, carers, friends and family members supporting them, bereaved people, health and social care professionals, volunteers working in palliative and end-of-life care and members of the public.

results1032 and 626 responses were received to survey 1 and 2, respectively. 20 people with lived and professional experience attended the prioritisation workshop. An updated list of 24 priorities for palliative and end-of-life care research was produced.

conclusionThe priorities reflect the range of issues shaping end-of-life experiences and serve as a call to action for researchers and funders.

Indexed as

Health PrioritiesPalliative CareResearchTerminal CareCaregiversFamilyHumansSurveys and QuestionnairesPALLIATIVE CAREPatient ParticipationResearch Design

Identifiers

PMID41688108
PMCPMC12911823

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.