Evidence map›Paper›PMID 41677914›Full record

SynthesisSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026

Towards the assessment of financial distress among cancer patients: a conceptual model of the financial effects of a tumour disease.

Sophie Pauge, Andrea Züger, Luise Richter, Viktoria Mathies, Bastian Surmann, Thomas Ernst, Natalja Menold, Wolfgang Greiner, Eva C Winkler, Katja Mehlis

Registry-linked trialAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05319925 (Financial Effects of a Tumor Disease), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05319925 completednot on this map

Financial Effects of a Tumor Disease

TypeobservationalSponsorUniversity Hospital HeidelbergRan2022 to 2023Enrolled213ConditionsCancerArmsPatient reported outcome measure
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Sophie PaugeDepartment for Health Economics and Health Care Management, School of Public Health, Bielefeld, University, Bielefeld, Germany.ORCID http://orcid.org/0000-0002-6032-0239
Andrea ZügerNational Center for Tumor Diseases (NCT), NCT Heidelberg, a partnership between DKFZ and Heidelberg University Hospital, Germany, Heidelberg University, Medical Faculty Heidelberg, Department of Medical Oncology, Section Translational Medical Ethics, Heidelberg, Germany. andrea.zueger@histor.med.uni-giessen.de.ORCID http://orcid.org/0000-0001-5540-780X
Luise RichterMethods in Empirical Social Research, Faculty of Arts, Humanities and Social Science, Institute of Sociology, Dresden University of Technology, Dresden, Germany.
Viktoria MathiesDepartment of Hematology/Oncology, Jena University Hospital, Jena, Germany.
Bastian SurmannDepartment for Health Economics and Health Care Management, School of Public Health, Bielefeld, University, Bielefeld, Germany.ORCID http://orcid.org/0000-0003-1655-0907
Thomas ErnstDepartment of Hematology/Oncology, Jena University Hospital, Jena, Germany.ORCID http://orcid.org/0000-0003-2147-489X
Natalja MenoldMethods in Empirical Social Research, Faculty of Arts, Humanities and Social Science, Institute of Sociology, Dresden University of Technology, Dresden, Germany.ORCID http://orcid.org/0000-0003-1106-474X
Wolfgang GreinerDepartment for Health Economics and Health Care Management, School of Public Health, Bielefeld, University, Bielefeld, Germany.ORCID http://orcid.org/0000-0001-9552-6969
Eva C WinklerNational Center for Tumor Diseases (NCT), NCT Heidelberg, a partnership between DKFZ and Heidelberg University Hospital, Germany, Heidelberg University, Medical Faculty Heidelberg, Department of Medical Oncology, Section Translational Medical Ethics, Heidelberg, Germany.ORCID http://orcid.org/0000-0001-7460-0154
Katja MehlisInstitute for Medical and Data Ethics, Heidelberg University, Faculty of Medicine, Heidelberg University Hospital, Heidelberg, Germany.ORCID http://orcid.org/0000-0001-6532-9876

Funding

German Cancer Aid 70113978
6 · The paper itself

Abstract

purposeA conceptualisation of subjective financial distress as a consequence of a cancer diagnosis and treatment is still missing due to a lack of a comprehensive model accounting for all relevant dimensions of financial effects of cancer experienced by patients. Our goal was to derive a model for the German healthcare system to shed light on the complex process of financial effects of cancer.

methodsThe model was developed through systematic literature review and qualitative studies, including interviews with 18 cancer patients and a focus group with 4 social services representatives. The iterative process of model development was accompanied by an ongoing exchange in the interdisciplinary research team.

resultsThe developed model of financial effects of cancer experienced by patients consists of three dimensions: (1) actual and anticipated financial disadvantages, (2) behavioural and cognitive coping strategies, and (3) subjective financial distress conceptualised as negative effects in different aspects of daily living: employment, living situation, family, social participation, health promoting lifestyle, additional personally preferred treatments, navigating the health system, and a further area so-called unspecific.

conclusionSubjective financial distress is driven by different financial effects of cancer experienced by patients and is perceived as negative in various aspects of daily living. While the identified categories of daily living can be observed in countries with universal healthcare coverage, the content and degree of each subcategory depend on country-specific characteristics. The introduced model can be used to inform the development of a new patient-reported outcome measure (PROM). TRIAL REGISTRATION NUMBER: NCT05319925 (registration date, 2022-06-01).

Indexed as

Financial StressNeoplasmsActivities of Daily LivingAdaptation, PsychologicalAdultAgedCoping SkillsFemaleFocus GroupsGermanyHumansMaleMiddle AgedQualitative ResearchCancerConceptual modelCoping strategiesFinancial distressFinancial toxicityPatient-reported outcomePatientsQualitative researchSocial services

Identifiers

PMID41677914
PMCPMC12901272

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.