Evidence map›Paper›PMID 41664035›Full record

ArticleBMC geriatrics2026

Empowering informal caregivers of people living with dementia and enhancing digital health literacy through an extended digital intervention of the WHO iSupport manual: protocol for the project iDEM-Support.

Nora Berner, Theresa Sophie Busse, Jan P Ehlers, Franziska Anushi Jagoda, Amelie Meibeck, Ina Carola Otte, Julia Nitsche

Abstract read
In one paragraph

Article in BMC geriatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Nora BernerFaculty of Health, Chair of Didactics and Educational Research in Health Science, Witten/Herdecke University, Witten, Germany. nora.berner@uni-wh.de.ORCID http://orcid.org/0009-0007-2682-5528
Theresa Sophie BusseFaculty of Health, Professorship for Digital Health (Junior), Witten/Herdecke University, Witten, Germany.ORCID http://orcid.org/0000-0002-1821-749X
Jan P EhlersFaculty of Health, Chair of Didactics and Educational Research in Health Science, Witten/Herdecke University, Witten, Germany.ORCID http://orcid.org/0000-0001-6306-4173
Franziska Anushi JagodaFaculty of Health, Professorship for Digital Health (Junior), Witten/Herdecke University, Witten, Germany.ORCID http://orcid.org/0009-0007-9233-4452
Amelie MeibeckDepartment of Health Services Research, Faculty of Medicine, Institute for Diversity Medicine, Ruhr University Bochum, Bochum, Germany.ORCID http://orcid.org/0009-0004-0569-6470
Ina Carola OtteDepartment of Health Services Research, Faculty of Medicine, Institute for Diversity Medicine, Ruhr University Bochum, Bochum, Germany.ORCID http://orcid.org/0000-0003-0280-0899
Julia NitscheFaculty of Health, Chair of Didactics and Educational Research in Health Science, Witten/Herdecke University, Witten, Germany.ORCID http://orcid.org/0000-0003-3443-6649

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Informal caregivers of people living with dementia (PlwD) play a central role in home-based care. They are often exposed to emotional, physical, and organizational burdens, which increases their risk of psychological stress. Digital interventions have shown promise in supporting this target group. The WHO's iSupport program offers a digital training platform for informal caregivers of PlwD; however, it has not yet been translated or adapted for the German healthcare context. Furthermore, deficits in digital health literacy (DHL) present a barrier to the use of digital health services. The iDEM-Support project aims to translate the platform iSupport into German, culturally adapt it, and develop a module to promote DHL. Using a mixed-methods design, informal caregivers and experts are involved in a participatory manner to enable user-centered development of both the platform and the DHL module. The content and design are developed based on qualitative interviews and focus group discussions with informal caregivers (involved in both steps) and experts (only involved in the focus group discussions). Usability is tested and evaluated through think-aloud sessions and internal testing by the project team. The project aims to empower informal caregivers by improving the usability and accessibility of iSupport within the German healthcare context. The platform iSupport Deutschland seeks to enhance the self-efficacy, digital competence, and psychosocial resilience of informal caregivers. Additionally, the project offers approaches for sustainable integration of the platform into existing healthcare structures. The iSupport Deutschland platform will be evaluated in a randomized controlled study following the research and development described here.Trial registration Review: PROSPERO 2025 CRD420251048532.

Indexed as

CaregiversDementiaEmpowermentHealth LiteracyDigital HealthGermanyHumansAccessibilityDementiaDigital health literacyDigital interventionEmpowermentIndividual educationInformal caregiversMixed-methods, caregiving supportParticipatory design

Identifiers

PMID41664035
PMCPMC12958531

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.