Evidence map›Paper›PMID 41662117›Full record

ArticlePLOS mental health2025

Navigating racism, stigma, and autism services: A scoping review of the lived experiences of racially and ethnically minoritized families.

Julia Sterman, Zoe Wagland, Louise Scott-Cole, Natasha Spassiani, Janet Njelesani

Abstract read
In one paragraph

Article in PLOS mental health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Julia StermanEdinburgh Napier University, Edinburgh, United Kingdom.
Zoe WaglandEdinburgh Napier University, Edinburgh, United Kingdom.
Louise Scott-ColeWake County, Cary, North Carolina, United States of America.
Natasha SpassianiEdinburgh Napier University, Edinburgh, United Kingdom.ORCID https://orcid.org/0000-0003-3715-3898
Janet NjelesaniDepartment of Occupational Therapy, New York University, New York, New York, United States of America.ORCID https://orcid.org/0000-0002-6134-3950

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Research and clinical practice that addresses the needs of Autistic children often de-centres minoritized voices, despite the existing inequities that prevents their access to services and community participation. Grounded in Disability Critical Race Theory, this scoping review sought to collate and synthesise the research on the intersecting lived experiences of Autistic children and families from racially and ethnically minoritized backgrounds to inform more culturally attuned paediatric clinical practice. The authors systematically searched 8 databases up to June 2025. Extracted data from included articles were analysed using qualitative content analysis informed by Disability Critical Race Theory. Fifty-six studies were included in this scoping review, with a total of 1454 participants across the included studies. Findings illuminated that families had difficulty learning about and understanding autism, gaining access to services that met their cultural and language needs, and experienced disability-based stigma and racism. Families thrived when they were provided opportunities to learn about autism and available resources, could advocate for their child and others, access services from providers they trusted, and have their Autistic child celebrated within their community. To reduce inequities, there is a need for service providers to conduct culturally attuned paediatric clinical practice that centres the priorities of Autistic children and their families from racially and ethnically minoritized backgrounds. This paediatric practice needs to be neurodiversity-positive, culturally affirming, and financially, geographically, physically, socially, and culturally accessible.

Identifiers

PMID41662117
PMCPMC12798594

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.