Evidence map›Paper›PMID 41661890›Full record

ArticlePLOS mental health2025

A qualitative study of Ebola survivors' psychological experiences of evacuation, treatment and community reintegration: Lessons in holistic person-centred care from the 2022 outbreak in Uganda.

Rwamahe Rutakumwa, Susan Ninsiima, Eddie Settuba, Leticia Kyohangirwe, Richard Stephen Mpango, Christine Tusiime, Joy Turyahabwa, Birthe Loa Knizek, Pontiano Kaleebu, Moffat Nyirenda and 3 more

Abstract read
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Article in PLOS mental health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

13 authors.

Rwamahe RutakumwaMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.ORCID https://orcid.org/0000-0002-2907-0163
Susan NinsiimaMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Eddie SettubaMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Leticia KyohangirweMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Richard Stephen MpangoMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Christine TusiimeMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Joy TuryahabwaMakerere University Business School, Kampala, Uganda.
Birthe Loa KnizekDepartment of Mental Health, Norwegian University of Science and Technology, Trondheim, Trøndelag, Norway.
Pontiano KaleebuMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Moffat NyirendaMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.
Hafsa SentongoMental Health Division, Ministry of Health, Kampala, Uganda.
Kenneth KalaniMental Health Division, Ministry of Health, Kampala, Uganda.
Eugene KinyandaMedical Research Council/Uganda Virus Research Institute & London School of Hygiene and Tropical Medicine Uganda Research Unit, Entebbe, Uganda.

Funding

Child Mental Health in HIV-impacted Low-Resource Settings in Developing Countries: Global Research FellowshipD43TW011541 · FIC · WASHINGTON UNIVERSITY · PI MCKAY, MARY MCKERNAN, NAKASUJJA, NOELINE · 2020 to 2024
$1.7M
FIC NIH HHS D43 TW011541
6 · The paper itself

Abstract

The Ebola Virus Disease (EVD) is associated with significant mental health and psychosocial problems among patients/survivors. Effective strategies for addressing these problems necessitate an in-depth understanding of the sociocultural, economic and political context of the outbreaks, and survivors' own experiences of the disease. Yet, such context and survivors' experiences remain inadequately understood. We explore the pre- and post-diagnosis/treatment and post-recovery experiences of survivors of the 2022 EVD outbreak in Mubende District (Uganda) and draw lessons for better management of future outbreaks. A qualitative study was undertaken in Mubende District to explore the lived experiences of various categories of persons affected by the outbreak. Participants were sampled purposively. In-depth interviews were held with 15 EVD survivors. A thematic analysis of data was done. Our findings reveal that across the entire spectrum of their encounter with EVD, patients had a range of overwhelmingly stressful experiences that, according to the participants, took a toll on their mental health. These included stigma during evacuation and on return to their communities upon discharge, perceived inhuman treatment from health workers, lack of epidemic preparedness at the EVD facilities, witnessing frequent EVD deaths due to the EVD Treatment Unit's open/unpartitioned ward, delayed removal of dead bodies from the shared ward, systemic lapses in health services and EVD-induced livelihoods challenges. In conclusion, EVD patients'/survivors' experiences across the entire spectrum of their illness - from the period before diagnosis to their treatment at the EVD Treatment Unit and, later, their re-integration into their communities - are characterised with high levels of unattended, self-reported psychological distress. We propose a holistic person-centred approach to healthcare for EVD suspects, confirmed cases and survivors. Additionally, EVD education and sensitisation programs need to target health workers, among other population groups.

Identifiers

PMID41661890
PMCPMC12798338

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.