ArticleSAGE open nursing
A Qualitative Study of the Lived Experiences of Pregnancy and Childbirth: Unheard Voices of Black Women With Sickle Cell Disease.
Article in SAGE open nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
4 authors.
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Abstract
The Sickle Cell Data Collection program reported maternal death rates in California (2004-2014) of 629 per 100,000 for Black women with SCD, 12 per 100,000 for Black women without SCD, and 6 per 100,000 in the general population. Yet little is known about the lived experiences of pregnant Black women with SCD, or their perceptions of nurses as advocates. To explore how social structures shape maternal health, the complexities of pregnancy while living with SCD, and nursing's role in care and advocacy, a qualitative study using semi-structured interviews was conducted. An interpretive framework centered participants' voices and revealed key themes: (1) Trauma During Childbirth; (2) Dismissal, Disbelief, and Inadequate Pain Management; (3) Self-advocacy; and (4) Emotional and Psychological Impact. Together, these themes highlight the intersecting challenges of pregnancy faced by Black women with SCD and the transformative potential of compassionate, informed, and equitable care.
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