ReviewInternet interventions2026
Engagement of people with lived experience in the design and development of digital mental health interventions: A scoping review of engagement characteristics and impacts.
Review in Internet interventions, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- How, why, for whom, and in what contexts organisational and team dynamics shape, and are shaped by, service user researchers in higher education mental health research centres: a realist review protocol.Research involvement and engagement · 2026Review
- Co-design rationales as living documents for reporting the exchange of experiential, professional and scientific perspectives in mental health care innovation.PLOS mental health · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Digital mental health interventions (DMHIs) aim to increase access to mental healthcare for people who would otherwise not access it. Accordingly, the design and development of DMHIs may particularly benefit from engaging people with lived experience (PwLE). Methods: A scoping review involving systematic database searches identified and synthesised original research reporting PwLE engagement in the design and development of DMHIs (published January 2000- April 2024). Articles were independently title/abstract screened by two authors, and full-text screened by one author. Included article data were extracted, independently checked, and descriptively synthesised. Results: Twenty-nine studies were included, published 2012-2024, in high-income countries. Engagement was mostly via 'consultation' level activities (e.g., focus groups), followed by 'involvement' or 'collaboration'. In almost half of studies, engagement spanned multiple engagement levels across the different development stages. Reported impacts included changes to content, design, and delivery (e.g., revised language). Authors credited engagement with improved DMHI relevance, acceptability, and inclusivity, while noted challenges include limited diversity among engaged PwLE and resource demands. For reported DMHI outcomes, studies reported positive findings related to use, and attitudes towards using DMHIs. However, reported findings were more mixed for mental health outcomes (e.g., symptom improvement). Additionally, it was not possible to directly link outcomes to PwLE engagement. Conclusions: Review findings highlight the increasing but predominantly consultative engagement of PwLE in developing DMHIs. Future research directions include more transparent and consistent reporting of engagement, deliberative decision-making around engagement levels/types, and more rigorous evaluation of engagement to investigate its association with DMHI outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.