Evidence map›Paper›PMID 41657697›Full record

Observational studyFrontiers in public health2026

National and state-level variations in caregiving for persons living with dementia in the US.

Joseph E Gaugler, Elma Johnson, Benjamin Denno, Matthew Baumgart, Lisa C McGuire

Abstract readObservational Study
In one paragraph

Observational study in Frontiers in public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Joseph E GauglerBOLD Public Health Center of Excellence on Dementia Caregiving, School of Public Health, University of Minnesota, Minneapolis, MN, United States.
Elma JohnsonBOLD Public Health Center of Excellence on Dementia Caregiving, School of Public Health, University of Minnesota, Minneapolis, MN, United States.
Benjamin DennoThe Alzheimer's Association, Chicago, IL, United States.
Matthew BaumgartThe Alzheimer's Association, Chicago, IL, United States.
Lisa C McGuireGerontological Society of America, Washington, DC, United States.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose: The objective of this study was to examine variations between dementia caregivers, caregivers of people without dementia, and non-caregivers across a range of sociodemographic and health variables nationally in 47 states and within five specific states representing a region of the U. S. (New York, Arizona, Minnesota, Idaho, Maine). Methods: This cross-sectional, observational study utilized 2021-2022 data from the Centers for Disease Control and Prevention (CDC) Behavioral Risk Factor Surveillance System (BRFSS). Bivariate and cross-tabulation analyses were conducted to examine empirical variation. Results: Although national results remain fairly consistent with prior research on dementia caregivers, heterogeneity emerges when comparing national results with dementia caregiving data across the five selected states. Conclusion: The availability of local data resources on dementia caregiving could help to provide more accurate/relevant estimates of ADRD caregiving prevalence and better deliver home and community-based services where they are most needed.

Indexed as

CaregiversDementiaAgedBehavioral Risk Factor Surveillance SystemCross-Sectional StudiesFemaleHumansMaleMiddle AgedSociodemographic FactorsUnited StatesAlzheimer’s diseasebehavioral risk factor surveillance surveydementiafamily caregivinginformal caregiving

Identifiers

PMID41657697
PMCPMC12872574

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.