ArticleBMC palliative care2026
The burden and needs of primary caregivers in home-based palliative care: a qualitative study based on social-ecological systems theory.
Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Meta-synthesis of qualitative research on comfort experiences of family caregivers in hospice care: a systematic review.Frontiers in public health · 2026Pooled it
- From rumination quagmire to hope's flame: a cross-sectional mediation study of family support and life satisfaction among hematological cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPrimary family caregivers bear heavy caregiving responsibilities in home-based palliative care, and face multiple caregiving burdens and unmet support requirements. Although previous studies have made progress, they have overlooked the coexisting influences between individuals, families, and society.
methodsA descriptive qualitative study was conducted. Using purposive sampling, 13 community-based palliative care caregivers in Kunming, China, were selected to participate in the study. Semi-structured interviews were conducted with the participants between June and August 2023, and the data were analysed using directed content analysis.
resultsBased on social ecosystem theory, three main themes and 12 subthemes were identified: (1) Microsystem, wherein caregiver distress and growth coexist (subthemes: physical burden and health management needs, emotional burden and psychological support needs, difficulties in caregiving practices, insights into life and personal growth); (2) Mesosystem, where there is insufficient community and family support (subthemes: lack of effective family support, heavy economic burden, gap in doctor–patient communication, lack of information access channels, shortage of professional community service resources); (3) Macrosystem, where there is lack of policy and cultural safeguards (subthemes: implementation of security policies, improve policy coverage, social taboos surrounding the topic of death).
conclusionsCaregivers in home palliative care exhibit multiple burdens and needs. Healthcare professionals should focus on caregivers’ mental health and alleviate caregiving stress by providing home palliative care training, promoting family support, and improving social services.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.